Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
I’m adopted. My birth mother was a spontaneous carrier and when she put me up for adoption she didn’t know about hemophilia. When I met her about ten years ago I found out that I have five younger siblings. Two of my brothers, Edwin and Steven, had hemophilia and died from HIV contracted in the […]
After my son Thomas was born with severe hemophilia, and subsequently finding out that I have mild hemophilia, my husband and I had a conversation about adding to our family. For us, it wasn’t a particularly hard conversation; we knew we were rolling the genetic dice, but we were comfortable with whatever DNA combination our […]
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