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Fit Factor: Inspiring Fitness Stories to Get You Going in 2018

January 9, 2018

Below, we’ll introduce you to three such people: Trevor Dunn, a young man with von Willebrand Disease, Dawn Evans, an adult woman who is asymptomatic carrier of Hemophilia A, and Barry Haarde, an adult male with severe Hemophilia A.  All of them have discovered a form of physical activity that is enjoyable and adaptable to […]

FitFactor: 10 Tips to Stay Healthy this Holiday Season

December 7, 2017

The holidays are upon us, and staying healthy during this season can be challenging.  While this is true for the general population, it is especially important for individuals with hemophilia or other bleeding disorders.  We understand the importance that activity and a healthy diet play in maintaining an ideal weight and decreasing the number of bleeding episodes […]

FitFactor: Stay Motivated for Fitness

October 3, 2017

For many of us, the biggest challenge to getting physical activity is just putting our minds to it. We all know how easy it is to talk ourselves out of something – and exercise is no exception. There are tons of ways we can keep our bodies healthy and active, so it doesn’t need to […]

FitFactor: ¡Consejos para tomar su rutina de ejercicios de vacaciones con usted!

August 31, 2017

  Si usted está escapando del clima de invierno para algunos R&R por la playa, o dirigirse a la casa de un familiar para ponerse al día, el viajar interrumpe su horario normal y puede hacer más difícil permanecer en la cima de su rutina de salud y ritmo de ejercicios. Hacer ejercicios es a […]

FitFactor: ¡Brindis para la buena salud … con té!

August 29, 2017

Ahora que el invierno está en pleno apogeo y el clima frío está sobre nosotros, puede ser fácil olvidarse de mantenerse hidratado. Sin embargo, sólo porque no sienta sed, no significa que su cuerpo tiene tanta agua como lo necesita. Una manera fácil de hidratarse (y calentarse) es beber té. No tiene azúcar añadido como […]

Volunteer Spotlight: Geared Up to Health, Wellness & Community

April 28, 2017

The Terry Lamb Health and Wellness Award is award is for exceptional commitment to supporting HFA in its national efforts to encourage health, nutrition and wellness behaviors in the bleeding disorders community. Terry Lamb had severe hemophilia, was an active member of the bleeding disorder community, and was a respected leader. Terry grew up in […]

Dear Addy: Self-care

January 23, 2017

Dear Addy, With the holidays behind us, I’m trying to focus on taking care of myself in the new year. However, I struggle to do this between family, work, and social obligations. Can you provide some tips on self-care so I can be a better advocate for myself and my family? Signed, Stressed Out Dear […]

FitFactor: How Does Your List of Healthy Foods Compare with a Nutritionist’s?

December 5, 2016

Do you feel that your views of what’s healthy align with the views of the experts? The New York Times published an interesting article a few months ago about public perception of what is “healthy” and how these have changed over time. The study also highlighted what foods nutritionists believe to be the healthiest (and […]

FitFactor: Six Steps to Sleeping Well

September 5, 2016

When it comes to health and lifestyles, many of us do not put sleep at the top of our priority list. We may not realize the numerous benefits that sleep has on our bodies and minds. Not only does it give us the rest we need to replace the energy expended from the day but […]

Infusing Love: For the Love of Basketball

February 3, 2016

It is important for individuals with a bleeding disorder to find a form of physical activity that they enjoy. When muscles are used during exercise it helps to keep them flexible and strong.  Physical activity also helps individuals to maintain a healthy weight, which keeps less stress off the joints, and has even proven to […]

How to Bust Stress

September 4, 2015

There are all kinds of reasons someone with a bleeding disorder or a caregiver to someone with a bleeding disorder might feel stress.  Aside from the daily stressors that we all feel, there can be added financial pressures, anxiety over treatment, running to appointments, dealing with a bleed, the list goes on and on. Stress […]

Taking the First Steps: Nutrition

January 9, 2015

For most of us the resolution is the same: Lose weight and get in shape.  However the path to accomplishing these goals might look totally different for each of us.  The most important thing is taking the first steps.  Starting with small changes will help you to see progress.  This in turn, will keep you […]

How Sugar and Sweeteners Affect Your Health

October 17, 2014

Did you know that the average American adult eats approximately 22 teaspoons of added sugar in their diet each day? The food we put into our bodies has a direct impact on how we look, feel, and on our health. For individuals with hemophilia or other bleeding disorders, eating healthy and maintaining a proper weight is especially important because it […]

All In for Gears for Good!!

March 14, 2014

The purpose of HFA’s FitFactor program is to provide the bleeding disorders community with services that are designed to improve health, fitness, and quality of life through regular physical activity and proper nutrition. Each year, in an effort to promote physical activity in the community and raise money for individuals and families in the bleeding […]

Taking Care of Me

May 22, 2013

Denial is a funny thing. There were several signs that indicated I needed to take some action about changing my habits and improving my overall health.  I chose to ignore most of those signs, giving myself excuse after excuse: I just don’t have time to exercise; there was a vegetable on my plate at dinner, […]

Largest health insurer to keep key parts of law regardless of court ruling

June 11, 2012

Largest health insurer to keep key parts of law regardless of court ruling from the Washington Post: http://www.washingtonpost.com/national/health-science/largest-health-insurer-to-keep-key-parts-of-law-regardless-of-court-ruling/2012/06/10/gJQA7VYfTV_story.html?tid=pm_pop By N.C. Aizenman, Monday, June 11, 12:11 AM The nation’s largest health insurer will keep in place several key consumer provisions mandated by the 2010 health-care law regardless of whether the statute survives Supreme Court review. Officials at UnitedHealthcare will announce Monday that whatever […]

Community Pharmacists Lose Bid to Immediately Block Express Scripts-Medco Deal

April 27, 2012

By Rebecca Adams, CQ HealthBeat Associate Editor A federal judge has denied the request of a group of community pharmacists to immediately stop the acquisition of Medco Health Solutions by Express Scripts, Inc. The judge will next decide whether to throw out the lawsuit. The pharmaceutical benefits management companies Express Scripts and Medco merged on […]

HHS Considering Study on Blood Donation Standards for Gay and Bisexual Men

March 16, 2012

By Jane Norman, CQ HealthBeat Associate Editor The Department of Health and Human Services wants input on how to design a study that would detail under what circumstances men who have a history of sex with other men should be allowed to donate blood. Under current Food and Drug Administration policy, men who have had […]

U.S. Department of Health and Human Services releases Essential Health Benefits Bulletin

January 6, 2012

On Monday, Dec. 16, the U.S. Department of Health and Human Services (HHS) released a bulletin outlining guidance to states on implementing Essential Health Benefits (EHBs).  As you may recall, the Affordable Care Act will require individuals to have insurance coverage by 2014.  Individuals and business may purchase health insurance in a state based “health […]

Chinese Firms Linked to Tainted Heparin Still Supplying U.S.

October 28, 2011

By Anna Edney Courtesy of Bloomberg News Oct. 26 (Bloomberg) — Two Chinese companies implicated in supplying contaminated ingredients three years ago to Baxter International Inc. for its blood thinner heparin are still supplying product to the U.S., Republican lawmakers said. Baxter recalled the blood thinner in 2008 amid reports of deaths and allergic reactions. […]

Advisory Panel Releases ‘Essential Benefits’ Report

October 7, 2011

The Institute of Medicine (IOM) released its report of recommendations to the United States Department of Health and Human Services regarding what health benefits should  be provided by insurance plans under the Health reform law – the Affordable Care Act (ACA).   The ACA requires states to set up an health insurance market place or exchange by […]

Understanding the Debt Ceiling and the “Super Committee”

September 9, 2011

In early August the President signed into law the Budget Control Act of 2011, which is reported to save approximately $917 billion over the next ten years and will raise the debt ceiling by $900 billion, therefore carrying the government through the end of 2011. The bill also establishes a new joint Congressional committee that […]

Drug Companies May Face Uphill Battle on Passage of FDA Review Funding

September 5, 2011

CQ TODAY ONLINE NEWS – HEALTH Sept. 2, 2011 – 8:17 p.m. By Emily Ethridge, CQ Staff The pharmaceutical industry continues to push lawmakers to act quickly on approving a deal that would fund the Food and Drug Administration’s drug review process. But, although lawmakers from both parties have pledged to mark up the legislation […]

Medical mystery: UMass doctors race to counter rare blood disorder

September 2, 2011

By Geraldine A. Collier Courtesy of Worchester Telegram & Gazette Doctors are taught in medical training to “look first for the horses, not the zebras.”  In other words, look first for the typical causes of symptoms before exploring more exotic possibilities. But, former Worcester School Superintendent John Durkin wouldn’t be alive today if his doctors at […]

America’s Innovation Agency: The FDA

September 2, 2011

By instilling confidence in U.S. products and technologies, we stimulate economic growth and open markets overseas. By MARGARET A. HAMBURG Courtesy of the Wall Street Journal There are encouraging signs that the pharmaceutical industry’s pipeline of new products is not as stalled as some say.  Already in 2011, the Food and Drug Administration (FDA) has approved […]

So Far, Exchanges Are a ‘Mixed Bag’ for Patients, Group Says

July 6, 2011

By John Reichard, CQ HealthBeat Editor The health care law will disappoint many Americans if its health insurance exchanges don’t deliver decent coverage at affordable rates for consumers, including those with serious illnesses like cancer. Meeting those expectations may be difficult, judging from comments by a major patient advocacy group as it waits for the […]

Health Insurance Exchange Regulation Due Out July 7

June 29, 2011

CQ HEALTHBEAT NEWS By John Reichard, CQ HealthBeat Editor   The Obama administration plans to release its proposed regulation on state health insurance exchanges July 7. The rules governing the establishment of the exchanges, which under the health care overhaul law begin operating in 2014, are much anticipated by state lawmakers, insurers, employers and consumers. […]

New Study Highlights Problems Accessing Specialty Care for Children on Public Insurance

June 17, 2011

  New England Journal of Medicine Auditing Access to Specialty Care for Children with Public Insurance June 15, 2011 Joanna Bisgaier, M.S.W., and Karin V. Rhodes, M.D. Evidence suggests that the 37 million children covered by Medicaid-CHIP are less likely to receive specialty care than children covered by commercial insurance. Children covered by Medicaid-CHIP may face greater […]

Medicaid call-in days next week

June 10, 2011

From Our Friends at Families USA! With both the House and Senate in session next week, we expect the debate about how to reduce the deficit to be front and center. We hope you join us in asking your members in the field to call their U.S. representative and senators and urge them to reject Medicaid cuts, in any form. […]

State Legislators Tussle Over Health Benefit Exchanges as Adjournments Near

May 18, 2011

CQ HEALTHBEAT NEWS May 18, 2011 By Jane Norman, CQ HealthBeat Associate Editor As state legislatures near the end of their sessions, many lawmakers are still struggling with whether to approve measures to set up health-benefits exchanges created under the health care law — and it appears almost certain work in many states will extend […]


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