Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
The holidays are upon us, and staying healthy during this season can be challenging. While this is true for the general population, it is especially important for individuals with hemophilia or other bleeding disorders. We understand the importance that activity and a healthy diet play in maintaining an ideal weight and decreasing the number of bleeding episodes […]
The holidays are right around the corner. Ask any mom of a child with hemophilia and we will all attest to the same thing – with holidays come bleeds! There is no medical explanation for this crazy phenomenon, but sure seems true for many. For us, it always started with Halloween and lasted until the […]
Dear Addy, I want to give back this holiday season, but I’m not sure how. Can you recommend ways to be more involved in my community? Signed, Inspired to Serve _____________________________________________________________________________________________________________________________________________________________ Dear Inspired, The holiday season is a good time to reflect on giving to a cause or serving those in need. There are many […]
Christmas is just a few days away. If any of you are like me, you are wondering where the year has gone. At work, clients want all their matters wrapped up and at home I need all my presents wrapped up!! You’ve probably heard the Walgreens commercial – on the corner of happy and healthy. […]
Life will almost always be unpredictable; it’s just part of the experience of being human. You can do your best to try and control how things will turn out, but even with precise planning and micromanaging, we all have to face disappointments and adjust our sails along the way. Accepting this and gaining new perspectives […]
Late this September, during the HFA Gears for Good Charity Bike Ride, I had one of those conversations in life you remember forever. It was with my son’s best friend, Aidan. About three years ago in elementary school, Benny, our now 12 year old with severe hemophilia, befriended a classmate who had just moved to […]
I am not spontaneous. The “spur-of-the-moment” gene did not get passed along to me, or anyone else in my family. I am definitely a Type A kind of gal. When it comes to holidays, vacations, and family dinners I love to make plans months in advance so it will be a memorable event. Anticipation of […]
We very nearly spent Christmas in the hospital last year, when Thomas developed a port infection the week before. If you think December is a crazy time of year, try adding in a long hospital stay – you quickly realize how much you aren’t getting done while you sit by your kid’s bedside. I had […]
“Mom, can I have a Cool Tools Tow Truck?” This was the question Max asked me when he was 4 years old and Cool Tools were THE gift of the year. Like so many of us, I had good intentions, but work, bleeds, motherhood, more bleeds, and life kept me super busy. As Christmas approached […]
It is important to try not to let holiday meals sabotage the healthy eating habits you have formed, but with so many delicious and tempting options, it is hard to decide what is best. Let FitFactor and the USDA help! Check out our many healthy recipes on the FitFactor recipe page and then head over to a new blog from the USDA, “Makeover […]
I’ve been traveling more this past year than ever before. It’s both a blessing and a curse each time I leave for a trip on my own without the rest of the family. The anticipation of having some solitude and quiet time is fantastic. On the flip side, I’m a typical control-freak of a hemo […]
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