Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
Does anyone really like getting stuck with needles? I don’t and I only gets labs drawn yearly and have my flu shot once a year. When you have hemophilia and you have serious needle phobia, infusions don’t go well. My son Chris, who is now 30, admits he still has severe needle phobia. Chris’s first […]
Dear Addy, I’m applying for jobs and am nervous that the marks on my arm from infusing will present awkward questions. What should I do? Signed, Marked Dear Marked, This is a valid fear. For people unfamiliar with the need to infuse medication verses swallow it, the marks on your arms left by multiple infusions […]
It is a common refrain to hear medical professionals comment on how well Logan does with his infusions. This is usually echoed in a, “He is such a champ,” or “How did you get to be so brave,” or the sadder version, “I wish my older patients were this good.” I am proud of Logan; […]
My non-hemophilia mom friends have often say to me, “I just don’t know how you do it. I just can’t imagine raising a child with hemophilia.” I normally reply with, “my son with hemophilia is my baby, and I’ll do anything for him.” Earlier this summer, this very conversation played out between myself and HFA […]
I’ve given factor in the back of a moving car, at the beach while on vacation, and even in a tent while camping. When most parents start learning to give factor, they learn at their kitchen table, or at the Hemophilia Treatment Center (HTC). Like most parents, a nurse began giving my son his factor […]
Sign up for E-mails, Dateline Magazine, and other ways to stay connected.