Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
A mother’s love is constant and unending. As mothers, we love each of our children unconditionally. Just because I have one son with a bleeding disorder and another one without, doesn’t result in any more or less love for either of my boys. However, I do think having a son with a serious medical condition […]
One of the ways I’ve learned the most about raising a child with hemophilia is by talking with our community’s “Blood Brothers,” the guys who have grown up and moved away from home, whether they be in college or have grandchildren of their own. These men are able to give it to me straight about […]
By: Emily Boyer It has been a long day; an immeasurably long day. We spent it at the Hemophilia Treatment Center (HTC) in an attempt to rid my little one’s body of a persistent inhibitor. It was long. I am tired. My house is a mess – I do not remember the last time my […]
Sign up for E-mails, Dateline Newsletter, and other ways to stay connected.