Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
I adore the “On This Day” feature on Facebook. It is a wonderful way to look back at the past to see what has happened on any given day in past years. It often reminds me of those moments that may have slipped my mind in a blur of parenting madness over the last fifteen […]
Ask for help! It seems easy to do, but it takes a lot of effort. If someone would have told me, as a hemo mom, “You need to ask for help!”I could have saved myself a few unnecessary headaches. I recall a time when my oldest son, Marques, was in the hospital with a bad […]
Not related by blood. Family because of it. I had a button made with this quote when Max participated in the Beards for Bleeders fund-raiser two years ago. Something I have gained from the bleeding disorder community is an oddly mismatched, but amazing group of BFFs. My gang, as I like to call them. What […]
Until recently my husband and I didn’t realize how alone Chris felt growing up with hemophilia. He had support from family, friends, coaches, teammates, the treatment staff, and us. Yet he didn’t have anyone to talk with that really understood what it was like to have hemophilia. We tried our best to not treat Chris […]
I have an incredibly sweet and endearing child. I have been told on more than one occasion by his teachers that he has a sense for other children’s feelings, he knows when children are hurting, and he makes an effort to console them. I would love to take full credit for Logan’s sweet personality, but […]
Daffodils blooming, grass growing, longer days, and camp applications arriving in the mail mark the arrival of spring. We have a top-notch medical camp facility just forty-five minutes from our home. Our local Children’s Hospital hematology/oncology department sends staff to run the camp and take care of the kids. Camp is a week of acceptance. […]
Does anyone really like getting stuck with needles? I don’t and I only gets labs drawn yearly and have my flu shot once a year. When you have hemophilia and you have serious needle phobia, infusions don’t go well. My son Chris, who is now 30, admits he still has severe needle phobia. Chris’s first […]
We’ve all read those statistics that discuss the cost of raising a child. Most I’ve seen report the costs in the $250,000 range. Kids are expensive. Just recently, at Target, our cart contained a variety of things that were not on my list and, of course, I had to actively tell my 4-year-old that he […]
For those of us with children who have their own cell phones, how many times a day do you say, “Get off the phone!” or “Put the phone down!”? But I challenge you to think about yourself: How many things are you doing right now? Other than reading this blog – one, two, three more […]
I was recently talking with someone about Chris’s Seven Summit Quest, and the woman I was talking to said something that I didn’t understand. She said she was glad we raised Chris to not be a victim of his hemophilia. I asked her what she meant by that. She said so often people use medical […]
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