Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
As a hemophiliac there are many things I am grateful for that most “normal” kids just don’t get like the amazing bonds with my blood brothers and their families during conferences and at camp. However, what I am by far most grateful for is my mother. After dealing with all the challenges related to hemophilia, […]
Everyone finds coping mechanisms to get through stressful situations. Moms quite often bear the brunt of the stress as caregivers, and many moms of children with bleeding disorders find humor, and especially sarcastic humor, to be a helpful way to deal with the day-to-day issues of hemophilia or other bleeding disorders. They see the irony […]
Oprah Winfrey has been quoted, “I always say moms have the toughest job in the world.” Everybody knows Oprah is right more often than not. What would the job description for a mom with a child of a bleeding disorder look like? I think maybe it would be something along these lines: Job Title: Mama […]
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