Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
A lot has changed since my daughter was diagnosed with a platelet storage pool deficiency in 2011. Initially, there was little information and case studies to look to for reassurance. Not having a treatment plan led to many fears, doubts, and unknowns and wondering if I could make it through another injury or trip […]
Do you ever wish there was someone who truly understood what you were going through? Do you wish you could surround yourself with a support network of other women in your local area, but can’t find them? Do you wish you had more support from women in the bleeding disorders community? In 2013, a group […]
This is becoming one of my favorite times of the year to be a bleeding disorders advocate. It’s the time of year when individuals of all ages come together to raise crucial money for the community by participating in walks and bike rides across the country. In 2011, HFA hosted it’s first annual Gears for […]
I’d be lying if I said my nerves weren’t through the roof upon entering the gates to the Taylor Family Foundation’s Camp Arroyo. To say that going to a family camp took me out of my element would be an understatement. I had no idea what I was getting myself into or what to expect. […]
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