HFA Observes February 29 As Rare Disease Day

February 23, 2016

The Hemophilia Federation of America (HFA) joins the National Organization for Rare Disorders (NORD) on February 29, and others around the world in observing Rare Disease Day. The purpose of this day is to focus attention on the needs of patients and families affected by rare diseases. In the U.S., any disease affecting fewer than […]

Everyday Health: Dr. Sanjay Gupta Explains Hemophilia Myths & Facts

April 28, 2014

During Hemophilia Awareness Month we reached over 300K people on social media by posting a fact-a-day about bleeding disorders. Dr. Sanjay Gupta’s staff from Everyday Health, saw our efforts and reached out to us about working together on a piece about hemophilia. In honor of World Hemophilia Day, this informative article launched. __________________________________ Title: Myths and Facts About Hemophilia […]

Rare Disease Day: Feb. 28th 2010

January 14, 2010

Celebrate Rare Disease Day on February 28th 2010!  Write your governor to ask for the last day in February to be proclaimed Rare Disease Day in your state.   Thank you to NORD, the National Organization for Rare Disorders for organizing this event!

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