Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
AFFIRM (Adult Fellowship for Integrating Responsible Mentors) is a three- year leadership development program targeting men ages 25 to 35 from around the world . In its second term, ten men have demonstrated dedication and leadership within their local community to improve the lives of those with a bleeding disorder (see list below). Twice a […]
The thing about kids is that they grow up they move on and make their own choices. That’s what Max did – he moved on and made his own choices. That’s not to say he has always made GOOD choices. But what would the point of all the years of teaching him to be independent […]
Celebrate Rare Disease Day on February 28th 2010! Write your governor to ask for the last day in February to be proclaimed Rare Disease Day in your state. Thank you to NORD, the National Organization for Rare Disorders for organizing this event!
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