Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
I lost my job on a Monday. The following Tuesday, I was making the hour-long trek to our HTC for bi-monthly prophy for my 15 month old son, Ben. I had a lot of time to think about what had just happened, what in the world I was going to do, and where to go […]
One of my co-workers often uses the phrase unconscious incompetence. It essentially means you just don’t know what you don’t know. The recent election surprised many. I’ll stay away from the politics but I can’t help but reflect on the flippant comments made by a constitutional law professor post-election who referred to those who were […]
My first national bleeding disorder conference was in New Orleans in 1998. I was overwhelmed at the over 2,000 individuals in attendance. My son was two and the enormity of hemophilia hit me hard when I saw men in wheelchairs, using walkers, and not moving their limbs with ease. What in the world was really in […]
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