Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
When I hear the word “pain” I immediately relate. We all know pain and its many forms. But do we know how to move past the physical hurt and the emotional guilt? The reality of our world is that pain is a part of life – we can dwell in suffering or we can […]
For the past four years I have been participating in Hemophilia of South Carolina’s legislative days. During this annual event, I meet with our local representatives to share my experience of raising a child with a bleeding disorder and why it is important to support state programs that support our community. In prior years, I […]
When you are in the middle of what seems like a never-ending bleed, you function in the moment, hoping that things get better soon. Living with a chronic condition has helped my family learn to look at things in a positive light, and I like to think it has helped me become someone who sees […]
“Hope is important because it can make the present moment most difficult to bear. If we believe that tomorrow will be better, we can bear a hardship today.” -Thich Nhat Hanh I have never been a big fan of awareness bracelets — the kind that are made of rubber that have sayings and logos promoting […]
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