Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
By offering additional resources and education about the benefits of self-care and exercise for young adults, we hope to inspire a lifetime of healthy choices and habits! Listen as Dr. McClain shares tips on how to manage stress and practice self-care, especially for people living with a bleeding disorder.
Dear Addy, With the holidays behind us, I’m trying to focus on taking care of myself in the new year. However, I struggle to do this between family, work, and social obligations. Can you provide some tips on self-care so I can be a better advocate for myself and my family? Signed, Stressed Out Dear […]
Dear Addy, I’m concerned about how my bleeding disorder is effecting my mental health. However, it’s not clear that my insurance covers a therapist or counselor so I keep putting off seeking counseling or therapy. How important is mental health and where do I find the correct insurance information? Sincerely, Taking Control _________________________________________________________________________ Dear Control, […]
Dear Addy, I’m preparing for my first year of college, which also means managing my hemophilia without my parents and local HTC. How do I make this a smooth transition? Is there anything I need to do before I get to school? Sincerely, Back to School Jitters ________________________________________________________________________________ Dear Jitters, Congratulations on this exciting transition. […]
We had a tough winter. We spent more time than ever before cuddled up in an ER room watching whatever Disney movie was on the in-hospital. Doctors and nurses would rush in and out. We ate fast food and hospital food.. We coped. Because, this is our life. This is our reality. We have a […]
When I am toting around my two preschool aged boys to kids activities or the store, I typically get the comment, “You have your hands full.” I reply with a smile in agreement, but in my mind I respond, “If you only knew.” Recently when someone opened heavy doors for me as I struggled with […]
Often times I am talking with other moms and the conversation comes up about how tired we are or how we find it difficult to make time for ourselves. As caregivers, we are constantly doing for others. We are making meals, help with homework, running errands, or being a taxi for our kids. Being a […]
As hemo moms, we are the best when teaching others about self-care, but can be the worst at taking care of ourselves. Quick question — When was your child’s last doctor’s appointment and when is the next one scheduled? Now ask those same two questions of yourself. For most of us, we can’t quickly answer […]
How are you supposed to find time for yourself? The never-ending housework, cooking, homework, schoolwork, sports activities, meetings, volunteering, 40+ work week, can leave anyone tired. Add hemophilia to the mix with the supply ordering, delivery, bleeds, doctor appointments, missed school and work, and it can be downright overwhelming. Where can you insert “me” time […]
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