Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
Dear Addy, My son has hemophilia and loves to play sports. He is going into 6th grade this fall and wants to join the soccer team. How do I set realistic expectations with him and his coach? Signed, Soccer Mom Dear Mom, You are not alone in your concerns – this is a common question […]
It is important for individuals with a bleeding disorder to find a form of physical activity that they enjoy. When muscles are used during exercise it helps to keep them flexible and strong. Physical activity also helps individuals to maintain a healthy weight which keeps less stress off the joints, and has even proven to […]
One of the positive things about hemophilia is the different sports and hobbies it has reintroduced into our family life. When Micah was three, we attended our first hemophilia fundraiser. It was at a bowling alley. He absolutely loved it and thought it was funny when the pins fell down and everyone clapped. He loved […]
Exercise has always been pretty important for hemophiliacs, especially severe hemophiliacs like my brother and I. My parents felt that living an active life would go a long way toward fulfilling that goal. However, exercise is a series of trade-offs. Growing up I was told to, “exercise those muscles, in a less impactful way that […]
We are doing it. We are signing our son with severe hemophilia up for basketball. So why do I feel so weird about it? We have full support from our HTC for him to play and for letting him be overall active. We are a huge sports family; we especially love basketball. Our older girls […]
It is important that children with hemophilia make thoughtful decisions when choosing a sport that is right for them. The CDC and the National Center on Birth Defects and Development Disabilities (NCBDDD) produced a short video that speaks to this message. In “Playing it Safe With Hemophilia,”friends with hemophilia talk about playing sports growing up and […]
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