Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
Do you know those moments when you think, “all is right in our lives today?” We have had a few of those moments recently. We had a horribly tough year in 2016. It just seemed that whichever way we looked, something rough was happening to us or our extended family members. 2017 has been a […]
Dear Addy, I’m a woman who bruises easily and has a heavy menstrual cycle. Does this mean I have a bleeding disorder? Signed, Possible Female Bleeder Dear Possible Bleeder, This is a great question and one that HFA is hearing more frequently from women. Bleeding disorders can be dangerous if they are not treated. Women […]
Thomas’s first day of third grade was spent in a wheelchair, thanks to an ankle bleed. It certainly wasn’t the first time he had to attend school in the ‘chair,’ but I hated that it had to fall on the first day of school. We’ve always been very open about hemophilia – in first grade […]
By Kimberly Haugstad Benny had those dramatic finger print bruises that a lot of babies with severe hemophilia get. Moms know the ones: thumb prints in front on each side in middle of ribs, fingerprints in back where you leverage his weight as you pick him up, bruises all over the body. I remember agonizing […]
Most moms of children with bleeding disorders have a sick and twisted sense of humor. Many of us use humor as a coping mechanism. Honestly, I don’t know how I could have managed all these years without many moments of levity and giggles. For instance, one of the scariest potential bleeds Thomas ever had is […]
This interview was recorded while Paul was participating in the first annual Gears for Good Bike Ride. He talks about the support and encouragement he received from his parents, and how he will lead by example when sharing life lessons with his newborn son.
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