Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
When I am toting around my two preschool aged boys to kids activities or the store, I typically get the comment, “You have your hands full.” I reply with a smile in agreement, but in my mind I respond, “If you only knew.” Recently when someone opened heavy doors for me as I struggled with […]
While some women experience bleeding symptoms monthly or even more frequently, other women may go years before bleeding issues are recognized, making a diagnosis even more difficult. Jennifer was a hemophilia carrier for 33 years before she had her first bleed. She shares the emotional and physical pain she endured as she struggled to get […]
It is important for individuals with bleeding disorders to participate in some form of physical activity. Being physically active helps to strengthen one’s muscles, bones and joints. Having a strong healthy body can be a reduction in the number of bleeding episodes an individual might experience. Many in the bleeding disorders community are championing the […]
For women carrying the hemophilia gene, getting a proper diagnosis is not easy. By definition, if a woman has clotting factor levels less than 50%, she has mild hemophilia. Many women report that medical professionals are still under the assumption that a bleeding disorder can only affect males. It is these challenges that can make […]
Women have been the silent “carriers” of hemophilia and lived with other undiagnosed bleeding disorders for too long. HFA is committed to providing women with the information and support they need to reach a diagnosis and continue that support through the stages of their life with a bleeding disorder. HFA’s Blood Sisterhood program was established […]
Today is a day for celebrating grandparents, our experienced mentors in this journey of parenting. Our Infusing Love mom bloggers share what their parents or grandparents have meant to them and how they’ve offered support when times get tough living with a bleeding disorder. ________________________ Growing up, celebrating Grandparents Day was just as big as […]
Risk plays a major factor in what activities we allow our children to take part in. From the moment they are born, we, as mothers, worry about their physical and mental safety, and do our best to guide them in the right direction. Risk helps us determine the limits and boundaries we create to keep […]
Click here for Lew Collins Story Thank you to Lew Collins and Matrix Health for sharing this story with HFA!
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