Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
Note: The following is edited from a press release from Alnylam Pharmaceuticals. Read the full press release in its entirety here. Alnylam Pharmaceuticals Inc., a RNAi therapeutics company, and Sanofi Genzyme, the specialty care global business unit of Sanofi, announced Dec. 15, 2017, the U.S. Food and Drug Administration (FDA) has lifted the hold on clinical studies with fitusiran, including […]
Note: This is an edited form of a press release from Biogen. To read the original release in its entirety, click here. The first shipments of much-needed hemophilia therapy have started to arrive at treatment centers across the developing world Biogen, Swedish Orphan Biovitrum AB (Sobi) and the World Federation of Hemophilia (WFH) announced on Monday, October 12, 2015. […]
Note: This is an edited version of a press release from Biogen. To read the original release, click here. _____________________________________ Newly published clinical data demonstrate that people on extended-interval prophylaxis regimens with ELOCTATE® [Antihemophilic Factor (Recombinant), Fc Fusion Protein] experienced low bleeding rates, Biogen and Swedish Orphan Biovitrum AB (Sobi) announced on Monday, August 10, […]
My fellow hemo moms are like my sisters. They are the women I can call, text, or email when I need an outlet for my fears and frustrations. There seems to be an instant sisterhood amongst hemo moms as soon as you connect a group of them – whether that connection takes place in person […]
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