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Julie Mora, Video Created by Joe Tavarez

Julie Mora is a Spanish-speaking mother from Texas. Joe is part of HFA’s Young Leader program and created this video after a program he was a part of at Symposium!

The Importance of Comprehensive Care

Watch this video to understand why comprehensive care is vital for people in the hemophilia community to live a long, healthy life. You will hear from individuals who have directly been impacted by comprehensive care and an individual who works in one of the centers and has seen first hand the success of comprehensive care.

Kyle & Jesse: A Young Perspective

Kyle and Jesse are two boys who live with hemophilia. These two youngsters are showing a great example to their peers about the importance of advocacy!

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Bleeding Disorders in the News

Our voice is being heard!  The media is helping us share our story.  Check out our community members who were featured in the news!

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Von Willebrand Disease: A Family Affair

Von Willebrand Disease (vWD) is the most common type of bleeding disorder, affecting males and females equally (it is estimated that about 1-2% of the world’s population has vWD). However, because symptoms can be mild, many people affected have not been diagnosed. People with vWD have decreased or malfunctioning Von Willebrand factor (VWF) activity and therefore […]

Michael Bishop — You Are Not Alone

By Michael George Bishop My name is Michael George Bishop and I have Hemophilia B with inhibitors. I decided to share my story with the Hemophilia Federation of America (HFA) and “Voices” because I wanted other kids like me, with hemophilia -and those in physical or emotional pain – to know they are not alone […]

College Student Shares His Story

Christian Rodriguez, an HFA  advocacy intensive participant is an inspiration to the bleeding disorders community.  Christian has made it his mission to improve the lives of himself and the people in his community by sharing his story.  The goal of the intensives program is to inspire participants to take an active, grassroots approach to effecting […]

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They Need to Hear From Us: Destiny

I learned that legislators do want to hear from me.

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Assisting and Advocating for the Bleeding Disorders Community