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Blood Sisterhood

HFA’s Blood Sisterhood program provides education and support, promotes healthy practices, and establishes a unique sense of community for women throughout all stages of their lives with a bleeding disorder. We also work to encourage and develop strong self-advocates, and engage and motivate women to find their inner champion to seek diagnosis and a treatment plan with the overall goal of improving quality of life.


DIAGNOSIS RESOURCES SISTERHOOD STORIES

When you enroll in Blood Sisterhood, you will  be kept up to date on the latest news and events from HFA, and you will also receive a special Blood Sisterhood Welcome Kit!

The Blood Sisterhood program was established to help meet this need for women. A main component of the program is a peer network of women who support women with bleeding disorders on their life’s journey through diagnosis, treatment and day to day living. Ultimately, through furthering the conversation among women, we seek better health outcomes and a better quality of life for women with bleeding disorders.

Why Should I Get Involved with the Blood Sisterhood?

“HFA gave me the strength and the security to have my daughters get tested. And when I found out that both of them had von Willebrand Disease, it was not as scary as I thought it would be. I had a world of information and people to help us get through it.”

Together We Achieve More!

Who better to advocate for issues facing women with bleeding disorders, than Blood Sisters themselves!  Advocate for women with a bleeding disorder, click here for more information on how to get involved.

Help Us Improve Blood Sisterhood

You are a valued member of the bleeding disorders community. At HFA, we listen to your voice and put your feedback into action. As a result, all of our webinars, educational toolkits, and other resources are tailored to what you have suggested.

We cannot do this alone. We need you to continue sharing your voice to improve our programs and our service to the bleeding disorders community. If you have questions, comments, or suggestions, please reach out to us at info@hemophiliafed.org.


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