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About the Program




When you enroll in Blood Sisterhood, you will  be kept up to date on the latest news and events from HFA, and you will also receive a special Blood Sisterhood Welcome Kit!

WendyWomen have been the silent “carriers” of hemophilia and lived with undiagnosed bleeding disorders for too long. HFA is committed to providing women with the information and support they need to reach a diagnosis and continue that support through the stages of their life with a bleeding disorder.

The Blood Sisterhood program was established to help meet this need for women. A main component of the program is a peer network of women who support women with bleeding disorders on their life’s journey through diagnosis, treatment and day to day living. Ultimately, through furthering the conversation among women, we seek better health outcomes and a better quality of life for women with bleeding disorders.

Why Should I Get Involved with the Blood Sisterhood?

“HFA gave me the strength and the security to have my daughters get tested. And when I found out that both of them had von Willebrand Disease, it was not as scary as I thought it would be. I had a world of information and people to help us get through it.”

Together We Achieve More!

Who better to advocate for issues facing women with bleeding disorders, than Blood Sisters themselves!  Advocate for women with a bleeding disorder, click here for more information on how to get involved.

Help Us Improve Blood Sisterhood

You are a valued member of the bleeding disorders community. At HFA, we listen to your voice and put your feedback into action. As a result, all of our webinars, educational toolkits, and other resources are tailored to what you have suggested.

But we cannot do this alone. We need you to continue sharing your voice to improve our programs and our service to the bleeding disorders community. Please take 15-20 minutes to complete this survey to help us assess the knowledge you have gained as a result of your participation in HFA’s Blood Sisterhood Program. The information gathered will be used to help tailor the program to meet the needs of YOU, Blood Sisters.

Take the Survey

As a thank you for completing this survey and for being a valued member of the Blood Sisterhood, you will have the opportunity to enter into a raffle drawing for a trip to HFA’s Symposium in Cleveland, OH, April 26-29, 2018! Winner will have the choice of 3 nights of hotel OR roundtrip airfare for 2 adults. To win, the survey must be completed in its entirety. Winner will be announced November 15, 2017. Read terms and conditions here.


Assisting and Advocating for the Bleeding Disorders Community