HFA: Assisting and Advocating for the Bleeding Disorders Community since 1994.
There is no manual for parenting, yet Dads in Action and Moms in Action does offer many resources, serving as a community sounding board both for parents with their own diagnosis of a bleeding disorder, and for parents of children with hemophilia, von Willebrand disease, and other bleeding disorders.
HFA’s Resources include several options for learning, growth, and connection:
Resource Library & Toolkits:
Find resources on a variety of topics in the HFA Resource Library. Toolkits are collections of materials on a specific topic like Back to School issues, Bullying, Being Prepared, Coping with Sibling issues and more. The Resource Library also houses other informative articles to help you and your family.
Missed a live webinar? No need to worry – HFA records all our offered webinars. From advocacy related issues to parenting issues, you can find information here on YouTube.
Dateline Federation is the official HFA newsletter sent to all members and member organizations. Each issue contains current information on topics affecting people with hemophilia, news about current and new HFA programs, stories about HFA members, and highlights of member organization activities.
Infusing Love: A Mom’s View:
Moms need a safe place to land sometimes. With that in mind, HFA hosts, Infusing Love: A Mom’s View, a blog dedicated to all things mom! In this safe spot, moms of a child with a bleeding disorder are able to read stories and draw inspiration from like-minded (and similarly crazed) moms like themselves.
Voices – Families Stories:
You are not alone. Hear powerful stories from other inspirational moms, dads, and kids like you.