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HFA Community Research Portal


The HFA Community Research Portal is a platform HFA uses to collect data for research on the bleeding disorders community to more effectively serve the needs of bleeding disorder patients and their families.

Anyone with a diagnosed bleeding disorder (any type of hemophilia, von Willebrand Disease, platelet disorder, etc.), the caregivers of a child (under 18) with a diagnosed bleeding disorder, and any adult female who has a child with a bleeding disorder and knows, or believes, they are a carrier of a gene that causes hemophilia.

The Portal uses bank level security for access. This includes using 256-bit Advanced Encryption Standard to collect and store your data in an encrypted state. All data that you provide is protected from unauthorized discovery, access, use and/or export through intense security protections in concert with specially designed user tools and services.



Sign-up on the HFA Community Research Portal and you could win a scholarship to HFA’s 2018 Symposium, details below. The Portal is accessible by desktop and mobile computers using Apple iOS, Microsoft Windows XP or later, and Android operating systems, and all major Internet browsers, as well as mobile devices such as iPad, iPhone and Android devices.

Already signed up? Click here to sign-in!

Scholarship Giveaway to 2018 Symposium

HFA is giving away 25 Scholarships to our 2018 Symposium. The grand prizes are 25 Scholarships to HFA’s 2018 Symposium. A Scholarship includes a $250 travel stipend and a 3-night hotel stay while at HFA’s 2018 Symposium in Cleveland, OH.

To enter, sign up for an account on the HFA Research Portal for you and/or your minor child and complete the “Tell Us About You” survey for yourself or on behalf of your minor child. Once you have completed the “Tell Us About You” survey you will be prompted to provide your name, address, telephone number, and email address and to confirm your entry. Winners will be selected at random at a drawing on November 30th, 2017.

For the 2018 Symposium Scholarship Giveaway rules, please click here.


Assisting and Advocating for the Bleeding Disorders Community