The HFA Community Research Portal is a platform HFA uses to collect data for research on the bleeding disorders community to more effectively serve the needs of bleeding disorder patients and their families.
Anyone with a diagnosed bleeding disorder (any type of hemophilia, von Willebrand Disease, platelet disorder, etc.), the caregivers of a child (under 18) with a diagnosed bleeding disorder, and any adult female who has a child with a bleeding disorder and knows, or believes, they are a carrier of a gene that causes hemophilia.
The Portal uses bank level security for access. This includes using 256-bit Advanced Encryption Standard to collect and store your data in an encrypted state. All data that you provide is protected from unauthorized discovery, access, use and/or export through intense security protections in concert with specially designed user tools and services.
Would you like to participate?
Don’t wait and sign-up for the HFA Community Research Portal. The Portal is accessible by desktop and mobile computers using Apple iOS, Microsoft Windows XP or later, and Android operating systems, and all major Internet browsers, as well as mobile devices such as iPad, iPhone and Android devices.
Already signed up? Click here to sign-in!