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Navigating Patient Assistance Programs

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Patient Assistance Program

With the uncertainty of healthcare, many in the bleeding disorders community are concerned about the future of cost and access to factor products. Co-payments and out-of-pocket expenses can be devastating on a family’s budget. Many manufacturers of factor products have co-pay assistance programs that can provide a source of relief. Manufacturer Co-pay/Co-insurance Program Name & […]

Off to College Toolkit

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The road to independence and adulthood often travels through a college town.  In this toolkit, you’ll find resources about preparing and making the transition from high school to campus life.   This toolkit has resources that are specific to living with a bleeding disorder and others that are more general, but are applicable if you or […]

Handouts for “Tackling Pain & Anxiety: Parents as Coaches for Coping” Webinar

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Attached are two handouts (pdf) that compliment HFA Families webinar on August 12, 2014. Click on each image to open and download the document.  

Safety Toolkit for Bleeding Disorders

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To recognize June as National Safety Month, HFA has compiled this list of resources to protect and prevent accidents that can happen whether you have a bleeding disorder or not.  This toolkit has resources that are specific to living with a bleeding disorder and others that are more general.  View these tools as ways to […]

2014 Inhibitor Track Presentations at HFA Symposium

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Through input from the 2013 Symposium and a survey launched in the summer of 2013, HFA heard from the inhibitor community and developed a dedicated inhibitor track at our annual Symposium.  At HFA, a core value is listening to the community’s voice  – and the inhibitor community spoke loud and clear that more in-depth, higher […]

Coping with Sibling Issues Toolkit

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Sibling rivalry isn’t unique to parents raising a child with a bleeding disorder. However, when one child is diagnosed with hemophilia or von Willebrand Disease (vWD), it affects the entire family dynamic. Sometimes unaffected siblings feel resentment, left out, jealous, scared, and confused. This toolkit includes resources intended to help parents deal with what is […]

Tips & Tricks for Smoother Infusions

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A new resource for parents of children with hemophilia containing helpful tips & tricks for smoother infusions. This extensive list was compiled by families in the bleeding disorders community and medical professionals with years of experience making infusions more successful.  Click Here or on Image for PDF  Click Here or on Image for PDF       […]

History of Hemophilia 1940′s – 2000′s

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Those who fail to learn from history are doomed to repeat it.  As we honor our past, it’s important to look ahead to our future. During this year’s Symposium, we debuted a one-of-kind History Room that provided a historical journey of hemophilia over the last 70 years. The purpose of the room was to allow […]

World AIDS Day Webinar Slides & Handout

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Since 1988, December 1st has been observed as World AIDS Day. The World Health Organization designated this day to ensure renewed and ongoing attention to the threat posed by HIV/AIDS. It is estimated by Centers for Disease and Control (CDC) that over 1 million people in the United States are currently living with HIV. Hemophilia […]

HFA Families: I’ve Got This – Ages & Stages

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One of the most important thing parents can do in the course of raising children is foster a sense of independence.  This is exceptionally important when raising a child with a bleeding disorder who will ultimately be responsible for their own healthcare needs.  This two page document addresses some common barriers to medical adherence, and […]

Assisting and Advocating for the Bleeding Disorders Community