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History of Hemophilia’s 1940′s – 2000′s

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Those who fail to learn from history are doomed to repeat it. – Winston Churchill  As we honor our past, it’s important to look ahead to our future. During this year’s Symposium, we debuted a one-of-kind History Room that provided a historical journey of hemophilia over the last 70 years. The purpose of the room […]

Navigating Patient Assistance Programs

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Navigating Patient Assistance Programs With the uncertainty of healthcare, many in the bleeding disorders community are concerned about the future of cost and access to factor products. Co-payments and out-of-pocket expenses can result in a large chunk of a family’s monthly budget. Many manufacturers of factor products have co-pay assistance programs that can provide a […]

World AIDS Day Webinar Slides & Handout

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Since 1988, December 1st has been observed as World AIDS Day. The World Health Organization designated this day to ensure renewed and ongoing attention to the threat posed by HIV/AIDS. It is estimated by Centers for Disease and Control (CDC) that over 1 million people in the United States are currently living with HIV. Hemophilia […]

HFA Families: I’ve Got This – Ages & Stages

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One of the most important thing parents can do in the course of raising children is foster a sense of independence.  This is exceptionally important when raising a child with a bleeding disorder who will ultimately be responsible for their own healthcare needs.  This two page document addresses some common barriers to medical adherence, and […]

Bullying Prevention Toolkit

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Students with special needs, such as hemophilia and other bleeding disorders, are at a higher risk of being bullied.  But how exactly is bullying defined? Stopbullying.org defines bullying as “unwanted, aggressive behavior among school aged children. It involves a real or perceived power imbalance and the behavior is repeated, or has the potential to be […]

Eyes on Bullying: Tips for Standing Up to Bullies

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This is a sample page from Eyes on Bullying website and toolkit.  This page gives tips and techniques on how to stand up to a bully. Download now

Eyes on Bullying: Bullying Action & Victim Responses

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This is a sample page from Eyes on Bullying website and toolkit.  This page specifically gives examples of some bullying actions and how victims can respond. Download now

Eyes on Bullying: What You Should Tell Bullies, Victims, Bystanders

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This is a sample page from Eyes on Bullying website and toolkit.  This page specifically discusses the things to say to a bully, a victim or a bystanders of bullying. Download now

Bullying: A Guide for Parents from Montana State University

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This comprehensive guide from Montana State University offers a detailed explanation of what bullying is, how parents can talk to their children and tips for handling bullying when it happens to you…or if your child is the bully. Download now

Heads Up: Stop, Click, Think: A Guide About Cyberbullying

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Cyberbullying is a growing trend in bullying.  The document below is a great discussion piece to the Federal Trade Commission’s OnGuardOnline.gov video.   Use these links and document to empower yourself as parents to discuss the issue of cyberbullying with your children. Download now

Assisting and Advocating for the Bleeding Disorders Community