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2014 Inhibitor Track Presentations

Through input from the 2013 Symposium and a survey launched in the summer of 2013, HFA heard from the inhibitor community and developed a dedicated inhibitor track at our annual Symposium.  At HFA, a core value is listening to the community’s voice  – and the inhibitor community spoke loud and clear that more in-depth, higher level education was needed for those who are dealing with a long-term inhibitor.

With that in mind, an advisory committee began meeting to plan the agenda based on feedback from the summer 2013 survey.

While the track was closed to inhibitor patients only during the Symposium, HFA is pleased to provide access to the presentations by the speakers.  Please click on each topic below to view the slides from each educational session.

Topic

Description

Speakers

Out of Control:
What Sends an Inhibitor into Overdrive?
Using data from medical journals, case studies and individual experiences, this session is an exploration of how and why certain events over the lifespan (growth and puberty, stress, immunizations, sickness, adherence to ITT/ITI) can lead to more frequent and intense bleeding and a resurgence of the inhibitor titer if it’s previously been under control.

Sue Geraghty, R.N.

 

Immunology:
What’s the Immune System Got to Do With It?
 
How and why does your immune system – the thing you’ve been taught is supposed to fight off bad things happening in your body – matter in your inhibitor management?  This session will include a brief overview of how the immune system is involved and why collaborating with an immunologist could be an important step in managing your inhibitor.

Christine Kempton, M.D.

 

 

TLC from the PT:
Why Inhibitor Patients Need a Physical Therapist
 
A quad bleed in someone with an inhibitor is completely different than a quad bleed in someone without an inhibitor, therefore a physical therapist has to customize a recovery and rehabilitative program.  Using a compare and contrast method, our speaker, who has 20+ years of experience within the bleeding community and has worked with many pediatric and adult patients, will talk about the differences in physical therapy for those with inhibitors verses those without for various types of bleeds.  Participants will gain a better understanding of how and when to advocate for better physical therapy car

Sharon Funk, P.T.

 

 

 

 

What’s New?
Research Pipeline
 

 

 

Why, why, why?  Everyone dealing with inhibitors has asked this at some point in their journey.  While there may not be concrete answers in existing journal articles and research this session will explore the safety and monitoring of inhibitor development and the products inhibitor patients use, what could be done to prevent inhibitors for others, what are new and upcoming treatments to eradicate and/or manage inhibitors, as well explore the questions of why isn’t there a standard of care and management in inhibitors versus the potential of personalized treatment based on what products may work best for you.

Michael Callaghan, M.D.

 

 

 

 

Assisting and Advocating for the Bleeding Disorders Community