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Back to School Toolkit

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Sending your child with a bleeding disorder to school can be an overwhelming experience. Below are tools intended to help you educate the educators and relieve some stress and worry. All these items can be found individually in the HFA Resource Library as well:

  • presentations (recorded webinars, customizable PowerPoints for your use, and slides from past presentations/webinars)
  • downloads (articles, customizable tools/documents)
  • links to other resources
PRESENTATIONS
Customizable Hemophilia & The Student Hemophilia & The Student: This example is a customizable powerpoint presentation for parents or guardians to use at an in-service meeting to educate school personnel about your child(s) bleeding disorder. View now >>>
Setting the Stage for Success in School Setting the Stage for School Success – Webinar Slides: This document includes the slides from a Dads In Action webinar from August 2011. View now >>>
Hemophilia & School Success August 2013 Webinar graphic Hemophilia and School Success: Navigating the System – Webinar & Slides: This is a recorded presentation and its slides from an August 2013 Dads In Action webinar. View now >>>
DOWNLOADS
HFA_Dateline_2011_Q3_Fall_graphic HFA's Dateline Article: Your Child's School & You": The following article appeared in HFA's "Dateline" publication in the Fall 2011 edition. It's a brief one page summary of the federal laws that help children with hemophilia and other bleeding disorders in the school setting." View now >>>
Back to School Hemaware article NHF's Hemaware Article: Back to School": The following article appeared in the National Hemophilia Foundation's "Hemaware" publication in the July/August 2006 edition. It's a great summary of the federal laws that help children with hemophilia and other bleeding disorders in the school setting and includes a sample 504 plan." View now >>>
reasonable accomodations graphic Examples of Reasonable Accommodations for 504 and Individual Education Plans (IEP): This document includes a list of reasonable accommodations for parents and guardians can consider asking for. The accommodations listed are in no means comprehensive and not every child will require each of the items. Parents should work with your school to determine what is best for your child and what the school is capable of providing. View now >>>
students with bleeding disorders graphic Starting the Discussion with School Staff – A Guide to Students with Bleeding Disorders: This guide is meant as a starting point for discussions with school staff about how to best address the unique healthcare needs of students who have a bleeding disorder. View now >>>
IDEA_504 determination_Flow_Chart graphic Does My Child Need a 504 or IEP? A Flowchart to Help You Navigate: This handy flowchart comes from the Alaska Department of Education and Early Development's Special Education Handbook. In a clear, concise format, parents can see the path to either a 504 plan or an Individual Education Plan (IEP). View now >>>
customizable IHP graphic Customizable Individual Health Plan (IHP): This document is a customizable example of an IHP; check with your Hemophilia Treatment Center (HTC) or school to see if they have a template they use. View now >>>
Real Life Elementary School 504 ExampleReal Life High School 504 Example graphic Real Life 504 Examples – Elementary & High School: These samples are from families within the bleeding disorders community and all identifying information has been removed. The first example is from an elementary school-aged child; the second example is from a high school-aged student, who has a history of an inhibitor and his medical needs and accommodations were more extensive and may not be necessarily for all children with a bleeding disorder. View now >>>
my bleeding disorder graphic My Bleeding Disorder – Customizable Document for Classroom Teachers & Coaches: While IHP, IEP and 504 plans can be very useful in ensuring a safe educational experience for a child with a bleeding disorder, those files are generally kept in the front office or nurse's clinic in the school building. What about documentation to be kept IN the classroom? These document is a handy two page document that provides the basics about bleeding disorders and is specific to your child. Experienced parents have given this form to their child's classroom teacher so that it's readily available to the teacher and to any substitute teachers the child may have in the course of a school year. It's also a great tool to give to coaches, scout leaders – anyone who has contact with your child. View now >>>
sample 504 graphic Sample Section 504 Accommodation Plan: If you are thinking of requesting a section 504 plan for your child, you may want to see what a sample plan looks like. This document is only a sample; parents and guardians are encouraged to check with your local school district to see if they have a template they require for use. View now >>>
LINKS TO OTHER RESOURCES Still looking for more resources for having a successful school year? Check out these links >>>

Assisting and Advocating for the Bleeding Disorders Community