Whether you have a bleeding disorder yourself or you are a caregiver to someone with a bleeding disorder, it is often a juggling act to live with a chronic condition and maintain your livelihood. This toolkit is comprised of resources from a variety of sources related to employment issues including information about the Family Medical Leave Act (FMLA), the Americans with Disabilities Act (ADA), job training and disclosure issues.
- presentations (recorded webinars, videos)
- downloads (articles, documents)
- links to other resources
Note: Inclusion of resources by a third party site or organization do not constitute an endorsement by HFA, it’s Board, volunteers or staff.
|HFA Young Adults Hangout: Transitioning to Adulthood: Voices from the Community: This recorded hangout features young adults sharing their experiences of navigating school and the workplace with a bleeding disorder and an attorney from PSI’s A.C.C.E.S.S Program explains your rights as an employee with a bleeding disorder.|
|HFA Families Webinar: Hi Ho, Hi Ho, It’s Off to Work I (Don’t) Go: During this HFA Families Webinar, speakers from the U.S. Equal Employment Opportunity Commission and Department of Labor explained what the Family Medical Leave Act (FMLA) and the Americans with Disabilities Act (ADA) laws are, and how a parent can be eligible to use these benefits when you miss work due to your child's bleeding disorder.|
|HFA: Navigating Patient Assistance Programs: With employment changes, comes changing insurance plans. Review HFA’s Navigating Patient Assistance Programs chart to learn about manufacturer co-pay programs and patient assistance programs for assistance with factor when facing a gap in insurance coverage.|
|Hemophilia Federation of America Dear Addy Corner: Dear Addy is a regular advocacy feature from the Advocacy and Government Relations Team at HFA that answers questions from the bleeding disorders community. The following links are Dear Addy answers related to employment issues:|
|National Hemophilia Foundation: Steps for Living, Workplace Issues: Provides tips and information on disclosing your bleeding disorder, factors to consider surrounding job choice, and your rights as an employee.|
|National Hemophilia Foundation, Hemaware Magazine: The National Hemophilia Foundation publishes a quarterly magazine with information for people with bleeding disorders. The following links are articles related to employment issues:|
|LA Kelley Communications: LA Kelley Communications was founded in 1990 with the belief that any individual facing hardship, adversity or challenges-when given the right tools-can overcome, triumph, and even grow stronger in character and confidence.
|FMLA Handbooks: Linked below are handbooks from Capital Associated Industries, a non-profit employers’ association and the National Partnership for Women & Families, a non-profit, non-partisan 501(c)3 organization.|
|The American College of Obstetricians and Gynecologists: Journal Article, “Work Loss Associated With Increased Menstrual Loss in the United States” (PDF): This article studies the impact of heavy menstrual flow on missed time at work.|
|Vocational Rehabilitation: (PDF): Vocational rehabilitation agencies provide persons with disabilities with job coaching and training. This document from the Food & Drug Administration provides contact information by state.|
LINKS TO OTHER RESOURCES
|United States Department of Labor: This website provides an overview of the Family Medical Leave Act (FLMA) as well as fact sheets and resources, such as how to file a complaint with Wage and Hour Division of the Department of Labor.
|US Department of Commerce: Office of Human Resources Management: Provides information on unpaid leave under the Family Medical Leave Act (FMLA).|
|Americans with Disabilities Act: The Americans with Disabilities Act (ADA) protects persons with disabilities to participate fully in the workplace and in their communities.|
|Patient Services, Inc (PSI): Since 1989 PSI has led the charge to provide much needed patient assistance, soliciting donations to fund thousands of patients and their families in a myriad of disease areas. Patient Services Inc (PSI)’s A.C.C.E.S.S Program helps families navigate state and federal entitlement programs and provides a legal support hotline to assist with workplace and health insurance issues.|
|Hemophilia Foundation of Michigan, HIRED: An employment program of Hemophilia Foundation of Michigan, that is open to anyone with a bleeding disorder, however HFM does offer employment service workshops locally.|
|EmploymentLawHQ.com: EmploymentLawHQ.com is an interactive website that gives you instant feedback of situations on how rules for Family and Medical Leave usually apply.|
|Nolo: Nolo, a wholly owned subsidiary of Internet Brands, is the integration of some of the Internet’s first legal sites, including Nolo.com, Divorcenet.com and AllLaw.com. These sites were combined with the ExpertHub technology platform in 2011 to form the Nolo Network. This link provides state specific information on the Family Medical Leave Act (FMLA).|
|Job Accommodation Network: The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues. This link provides suggestions on accommodations in for people with bleeding disorders in the workplace.|