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Employment Issues Toolkit

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Whether you have a bleeding disorder yourself or you are a caregiver to someone with a bleeding disorder, it is often a juggling act to live with a chronic condition and maintain your livelihood. This toolkit is comprised of resources from a variety of sources related to employment issues including information about the Family Medical Leave Act (FMLA), the Americans with Disabilities Act (ADA), job training and disclosure issues.

  • presentations (recorded webinars, videos)
  • downloads (articles, documents)
  • links to other resources

Note: Inclusion of resources by a third party site or organization do not constitute an endorsement by HFA, it’s Board, volunteers or staff.

PRESENTATIONS

YoungAdultHangout_IMAGE HFA Young Adults Hangout: Transitioning to Adulthood: Voices from the Community:  This recorded hangout features young adults sharing their experiences of navigating school and the workplace with a bleeding disorder and an attorney from PSI’s A.C.C.E.S.S Program explains your rights as an employee with a bleeding disorder.

HiHoHiHo_Image HFA Families Webinar: Hi Ho, Hi Ho, It’s Off to Work I (Don’t) Go: During this HFA Families Webinar, speakers from the U.S. Equal Employment Opportunity Commission and Department of Labor explained what the Family Medical Leave Act (FMLA) and the Americans with Disabilities Act (ADA) laws are, and how a parent can be eligible to use these benefits when you miss work due to your child's bleeding disorder.

 

DOWNLOADS

Patient Assistance Programs_Helping Hands HFA: Navigating Patient Assistance Programs: With employment changes, comes changing insurance plans. Review HFA’s Navigating Patient Assistance Programs chart to learn about manufacturer co-pay programs and patient assistance programs for assistance with factor when facing a gap in insurance coverage.
Dear Addy Header_Updated Hemophilia Federation of America Dear Addy Corner: Dear Addy is a regular advocacy feature from the Advocacy and Government Relations Team at HFA that answers questions from the bleeding disorders community. The following links are Dear Addy answers related to employment issues:

StepsForLiving_IMAGE National Hemophilia Foundation: Steps for Living, Workplace Issues: Provides tips and information on disclosing your bleeding disorder, factors to consider surrounding job choice, and your rights as an employee.
Hemaware_IMAGE National Hemophilia Foundation, Hemaware Magazine: The National Hemophilia Foundation publishes a quarterly magazine with information for people with bleeding disorders. The following links are articles related to employment issues:

LAKelley_IMAGE LA Kelley Communications: LA Kelley Communications was founded in 1990 with the belief that any individual facing hardship, adversity or challenges-when given the right tools-can overcome, triumph, and even grow stronger in character and confidence.

CapitalOrg_IMAGE national partnership for women&families_IMAGE FMLA Handbooks:  Linked below are handbooks from Capital Associated Industries, a non-profit employers’ association and the National Partnership for Women & Families, a non-profit, non-partisan 501(c)3 organization.

ACOG_IMAGE The American College of Obstetricians and Gynecologists: Journal Article, “Work Loss Associated With Increased Menstrual Loss in the United States” (PDF):  This article studies the impact of heavy menstrual flow on missed time at work. 
Vocational Rehab Agencies_IMAGE Vocational Rehabilitation: (PDF): Vocational rehabilitation agencies provide persons with disabilities with job coaching and training. This document from the Food & Drug Administration   provides contact information by state.  

 

LINKS TO OTHER RESOURCES

DeptofLabor_IMAGE United States Department of Labor:  This website provides an overview of the Family Medical Leave Act (FLMA) as well as fact sheets and resources, such as how to file a complaint with Wage and Hour Division of the Department of Labor.

  • The Employment and Training Initiative of the Department of Labor and the Social Security Administration have teamed up to provide Disability Program Navigators (DPN) in 42 states including the District of Columbia, Puerto Rico, Guam, and the US Virgin Islands. DPNs provide resources and linkages to persons with disabilities on entering and remaining in the workforce.
DeptofCommerce_IMAGE US Department of Commerce: Office of Human Resources Management:  Provides information on unpaid leave under the Family Medical Leave Act (FMLA).
adagov_IMAGE Americans with Disabilities Act:  The Americans with Disabilities Act (ADA) protects persons with disabilities to participate fully in the workplace and in their communities.

PSI_IMAGE Patient Services, Inc (PSI): Since 1989 PSI has led the charge to provide much needed patient assistance, soliciting donations to fund thousands of patients and their families in a myriad of disease areas. Patient Services Inc (PSI)’s A.C.C.E.S.S Program helps families navigate state and federal entitlement programs and provides a legal support hotline to assist with workplace and health insurance issues.
HFM_Logo Hemophilia Foundation of Michigan, HIRED: An employment program of Hemophilia Foundation of Michigan, that is open to anyone with a bleeding disorder, however HFM does offer employment service workshops locally.
EmploymentLawHQ_IMAGE EmploymentLawHQ.com:  EmploymentLawHQ.com is an interactive website that gives you instant feedback of situations on how rules for Family and Medical Leave usually apply.
nolo_IMAGE Nolo: Nolo, a wholly owned subsidiary of Internet Brands, is the integration of some of the Internet’s first legal sites, including Nolo.com, Divorcenet.com and AllLaw.com. These sites were combined with the ExpertHub technology platform in 2011 to form the Nolo Network. This link provides state specific information on the Family Medical Leave Act (FMLA).

JAN_IMAGE Job Accommodation Network: The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues. This link provides suggestions on accommodations in for people with bleeding disorders in the workplace.

 

 

Assisting and Advocating for the Bleeding Disorders Community