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Safety Toolkit for Bleeding Disorders

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To recognize June as National Safety Month, HFA has compiled this list of resources to protect and prevent accidents that can happen whether you have a bleeding disorder or not.  This toolkit has resources that are specific to living with a bleeding disorder and others that are more general.  View these tools as ways to raise your awareness to keep you and your family safe.

Note: Inclusion of items that are for sale by a third party site or organization do not constitute an endorsement by HFA, it’s Board, volunteers or staff.

VIDEOS

SWIM/WATER SAFETY

FF_swim video_image HFA FitFactor video:  These videos from the HFA FitFactor team include safety tips for adult and youth swimmers, as well as safety tips for lap swimming and aquatic exercise.

BIKE SAFETY

FF_bike safe videos_image HFA FitFactor video:  These videos from the HFA FitFactor team feature safety tips about bicycle safety.

RUNNING/WALKING/HIKING SAFETY

FF_Running Safety Video_image HFA FitFactor video:  This video features safety tips for those wishing to exercise by walking or running.

 

DOWNLOADS

GENERAL SAFETY TIPS FOR BLEEDING DISORDERS

Safety Considerations in BD for the Home_image Safety for Bleeding Disorders – Fact Sheet: This document, created by HFA, addresses common concerns for parents raising a child with a bleeding disorder and offers tried and true tips from community members on what worked for them.

Infusing Love logo_square “Infusing Love: A Mom’s View” Blog: Keeping Watch:  In this post of “Infusing Love” our mom blogger shares how she dealt with inquiring minds who asked about her son's medical alert bracelet.

Hemaware_Medical IDs Could Save Your Life_image National Hemophilia Foundation, Hemaware, “Medical ID’s Could Save Your Life:” This article from the May 2011 Hemaware addresses the importance of wearing medical identification.

Hemaware_Bruise Protection_image National Hemophilia Foundation, Hemaware, “Bruise Protection:” This article from the May 2007 Hemaware discusses the use of protective gear for children with bleeding disorders.

MASAC 201_image National Hemophilia Foundation, Medical and Scientific Advisory Council (MASAC), “Recommendation 201:  MASAC Recommendation on Use of Emergency Medical Identification Devices for Children”:  A recommendation from MASAC regarding the use of emergency medical identification devices.

HOG_Safety Issues_image Hemophilia of Georgia, “The Hemophilia, von Willebrand and Platelet Disorders Handbook: Safety Issues”:  This webpage offers some great safety tips for parents of children of all ages.

Safer in 7_image Safe Kids Worldwide, “7 Safety Tips Less Commonly Known” Infographic: Safe Kids Worldwide is a global organization dedicated to preventing injuries in children, the number one killer of kids in the United States. While this document is not specific to bleeding disorders, it does offer tips not often thought about for safety at home and in the car.

MISSING CHILDREN, CHILD SEXUAL EXPLOITATION & ONLINE SAFETY

Truths About Teen Sexting_image UKnowKids.Com, “The Truth About Teen Sexting” infographic:  UKnowKids.com is an online service (fee for service) that help parents keep their social and mobile kids safe.  This link directs viewers to an eye opening infographic about the facts about sexting amongst teens.

SAFETY IN THE CAR

safe kids logo Safe Kids Worldwide, “Safety Tip Sheets for Car Seats, Booster Seats, Seat Belts & Getting Ready to Drive”:  Safe Kids Worldwide is a global organization dedicated to preventing injuries in children, the number one killer of kids in the United States.  The following documents and more are available on their website:

SAFTEY AT HOME

Alaska_up and away_medication safety_image Alaska Department of Health & Social Services, “Medication Storage Safety Tips”:   This one page tip sheet offers concise advice about the storing of medication.

Safe Kids_Toy Safety Tips_image Safe Kids Worldwide, “Toy Safety Tips”: Safe Kids Worldwide is a global organization dedicated to preventing injuries in children, the number one killer of kids in the United States.  This tip sheet offers insight about toy safety.

SWIM/WATER SAFETY

FF_Swimming Do's and Don'ts_image HFA FitFactor, “The Do’s and Don’ts of Swimming” Infographic:  This easy to ready infographic gives the do’s and don’t’s of water safety and swimming.

BIKE SAFETY

Bike Safety_NHSTA_image National Highway Traffic Safety Administration, “Kids & Bicycle Safety”:   This document outlines important steps to stay safe while riding a bike.

RUNNING/WALKING/HIKING SAFETY

FF Hiking Safety_image HFA FitFactor, “Staying Safe on the Trail”:  This article from the HFA FitFactor team describes steps people with bleeding disorders can take to ensure their safety while exercising by hiking.

SAFETY AT PLAY

choa_playground safety_image Children’s Hospital of Atlanta, “Playground Safety” Infographic:  This infographic from Children’s Hospital of Atlanta offers things to consider about safety on the playground.

/uploads/Playground-Safety-Fact-Sheet.pdf National Recreation and Parks Association, “Playground Safety = What Every Parent Should Know”:  A document from the National Recreation and Parks Association giving parents a glimpse into what playground safety considerations they should make.

 

LINKS

Children's Safety Network_website_image Children’s Safety Network National Resource Center for Injury and Violence Prevention is dedicated to working with state, territorial and community Maternal & Child Health and Injury & Violence prevention programs to create an environment where all children and youth are safe and healthy.
safe kids logo Safe Kids Worldwide is a global organization dedicated to preventing injuries in children, the number one killer of kids in the United States.
pool safely_image PoolSafely.gov is a program of the U.S. Consumer Product Safety Commission (CPSC). CPSC is charged with protecting the public from unreasonable risks of injury or death from thousands of types of consumer products under the agency’s jurisdiction.This link is also included on the CPSC website and includes several safety guides for children and babies.
National Child Safety Council_image National Child Safety Council (NCSC):  NCSC is the oldest and largest 501(c)(3) federal tax-exempt, nonprofit charitable organization entirely dedicated to the safety of children. The website offers many child-friendly safety posters, guides and activities.
one step ahead_image OneStepAhead.com: OneStepAhead.com is an online shopping site that offers many devices and safety gear for parents.

GENERAL BLEEDING/SAFETY

Safety tat_image Safety Tat Temporary tattoos:  These are great for the parent who is worried about child getting lost on a field trip and they have medical id temporary tattoos for kids who might not want to wear a medical identification bracelet or are too young to wear one.
medic alert_imageroad id_image Medical Identification Bracelets: Medic-Alert.org and Roadid.com are just two of the companies that provide medical identification jewelry for those with bleeding disorders and other chronic illnesses.

MISSING CHILDREN, CHILD SEXUAL EXPLOITATION & ONLINE SAFETY

ncmec_image The National Center for Missing & Exploited Children opened in 1984 to serve as the nation's clearinghouse on issues related to missing and sexually exploited children. This link directs the viewer to many of the resources available on their website.

SUN SAFETY

CDC_image The Center for Disease Control, (CDCworks 24/7 to protect America from health, safety and security threats, both foreign and in the U.S.  This link speaks specifically to ways parents can keep their children safe in the sun.

SAFETY IN THE CAR

 safercar_image Safercar.gov is a service of the National Highway Traffic Safety Administration.  This site allows the use to enter their location to find the nearest Car Seat Safety Check Locator.

PROTECTIVE GEAR

Child with bleeding disorder wearing helmet Many parents turn to protective gear like helmets, padded clothing and elbow/knee pads for their children with bleeding disorders.  Please speak with your healthcare provider or hemophilia treatment center to decide what’s appropriate and needed in your/your child’s case.  The following are examples of some of the items on the market (inclusion on this list does not indicate an endorsement of HFA, it’s Board, volunteers or staff):

Assisting and Advocating for the Bleeding Disorders Community