GINA: WHAT DOES IT MEAN TO US?
By Kisa Carter, HFA Public Policy DirectorThe Genetic Information Nondiscrimination Act of 2008 (GINA), was signed into law (Public Law 110-233) May...

STATE BUDGETS CRISIS IMPACTS BLEEDING DISORDERS COMMUNITY
By Kisa Carter, HFA Public Policy Director Twenty-nine (29) states face a combined $48 billion budget shortfall according to the Center on Budget and...

THE NATIONAL ORGANIZATION FOR RARE DISORDERS NAMES NEW PRESIDENT
Washington, D.C. (May 5, 2008) — The National Organization for Rare Disorders (NORD) announced today that its board has unanimously selected...