Superhero D.A.D: Delightfully Awesome Dude
On my husband’s Twitter profile, he describes himself as “Father, Entrepreneur, Righteous Dude, Caped Crusader Fighting the Evil Private Health Insurance Empire.” I’d testify those all true assessments of him. He’s a pretty good guy. I think most fathers in the bleeding disorders community are. They fight for justice for their kids just as hard [...]
Family Fun Weekend – Bleeding Disorders Association of NE New York
On Saturday, May 25th, the Bleeding Disorders Association of Northeastern New York hosted their annual Family Fun Weekend. The weekend was filled with fun, fitness, entertainment, exhibits and education for the whole family. The FitFactor Program of HFA sponsored the physical activities and a yummy interactive nutrition session. The video below captures some of the [...]
Your Choice. Your Voice.
Hemophilia Treatment Centers (HTC’s) are federally-funded facilities that offer comprehensive, multi-disciplinary services in a single setting. I likened them to one stop shopping: you have your physician, nurse, social worker, and physical therapist all on the same team with you, the patient or caregiver, as the star athlete. Today, there are 144 federally-funded treatment [...]
Talking to Your Provider About Pain
People living with a bleeding disorders know a thing or two about pain. Many with arthritis report having to wait until their body “loosens up” before they can begin their day. There’s also the pain you may feel after a particularly busy day when you’ve been on your feet, and that joint that always bothers you [...]
Community Voices: Taking Control of Your Health
“The only thing standing between you and your goals are the excuses you keep telling yourself as to why you can’t achieve them.” – Unknown Maintaining a balanced diet, staying physically fit, and managing stress are important for everyone, especially those living with a bleeding disorder. A regular, safe exercise program protects the joints, and [...]
Prior Planning Prevents Persistent Problems
A couple of years ago, we decided on a whim to take a drive to the top of Pikes Peak on Labor Day weekend. Standing at 14,115 feet, it’s one of Colorado’s highest mountain peaks and in July 1893, Katherine Lee Bates wrote the song “America the Beautiful” after admiring the view from the summit. [...]
Taking Care of Me
Denial is a funny thing. There were several signs that indicated I needed to take some action about changing my habits and improving my overall health. I chose to ignore most of those signs, giving myself excuse after excuse: I just don’t have time to exercise; there was a vegetable on my plate at dinner, [...]
Nia Dance Gets Us Moving at Symposium 2013
The FitFactor program encourages physical activity for individuals with bleeding disorders to strengthen muscles and joints and help reduce the frequency of bleeding episodes. We understand that choosing an exercise routine is very personal and that a “one size fits all” philosophy just doesn’t apply when choosing a physical activity program that is right for [...]
Taking Off the Super Woman Cape
Inspirational quotes appear in lots of different places in our lives: on social media, public service announcements, classroom posters, the bulletin board in the break room at work. Prior to becoming a mom, I rarely gave them a second thought – they were simply filler and not something I spent much time pondering. As I [...]
The Best Job You’ll Never Get (Monetary) Payment For
Oprah Winfrey has been quoted, “I always say moms have the toughest job in the world.” Everybody knows Oprah is right more often than not. What would the job description for a mom with a child of a bleeding disorder look like? I think maybe it would be something along these lines: Job Title: Mama [...]
Assisting and Advocating for the Bleeding Disorders Community
