TheÂ Hemophilia Federation of America’s (HFA) grassroots “Voices Campaign” recently launched at the 2009 Educational Symposium in Indianapolis and is gaining momentum by collecting powerful stories from the bleeding disorders community.
“Now is the time for action. As individuals and as a community, we must make every effort to get our voices heard with local and national congressional leaders during this extraordinary time of health care reform. If we do not illustrate the challenges and needs of our community through our stories, we risk being lost in the coming changes,” states Kimberly Haugstad, HFA Executive Director.
HFA is dedicated to taking an active approach to positively affecting health care policy change vis-Ã -vis the Voices Campaign. Two key staff members are dedicated to ensuring that our voices are being shared with key policymakers in statehouses and on Capitol Hill. Additionally, the HFA policy team recently launched a “Friday Update” via email to keep community members abreast of the reform debate and will launch advocacy blogs on the new enhanced HFA website slated to go live in mid-June. The website will also include ongoing video, audio and written stories of community members sharing their voices and concerns.
The Hemophilia Federation of America is a national 501(c)(3) organization consisting of Â 30 member organizations and numerous individual members who offer assistance and grassroots advocacy on behalf of the bleeding disorders community. Incorporated in 1994, HFA provides programs and services to improve the quality of life for persons with hemophilia and von Willebrand disease (VWD).