Rare Disease Day 2010

By Michelle PascucciRare Disease Day in the United States began in 2009 and the plans for Rare Disease Day in 2010 are taking off.  The National Organization for Rare Disorders (NORD) has launched a website to follow the events going on around the world on February 28, 2010.  The goal is to raise awareness about […]

Kakkis Every Life Foundation Art Contest

By Michelle PascucciThe Kakkis Every Life Foundation is having an art contest for individuals living with rare disorders.  The goal is “to empower artists affected by Rare Diseases to express their unique struggle with a rare disease.” Two Visa gift cards per age group and a Flip Video camera will be given away.  This is […]