2008: Costs Remain Problematic

Title: Higher Lifetime Insurance Caps Needed for Chronic ConditionsBy: Glenn Mones Source: PPTA Karen and George Bishop live in Findlay, Ohio, with their 16-year-old son, Michael, who has hemophilia B (factor IX deficiency). Michael is allergic to factor IX and needs high doses of an expensive bypassing agent to control his bleeding. Even with treatment, Michael has suffered many […]

Benefits of Prophylaxis Recognized

Prophylaxis versus Episodic Treatment to Prevent Joint Disease in Boys with Severe Hemophilia By Marilyn J. Manco-Johnson, M.D.Source: New England Journal of Medicine Before the development of cryoprecipitate, a plasma fraction that contains concentrated factor VIII, boys with severe hemophilia A had a diminished life expectancy. These children are at risk for many types of hemorrhages, but the predominant […]

CSL Behring Launches My Access™ Cost Share Program

People who are treating hemophilia A or von Willebrand Disease (VWD) with a CSL Behring therapy may now be eligible for financial support through the company’s My Access™ cost share program. My Access helps hemophilia A and VWD patients, who have private insurance, cover the out-of-pocket costs, up to $12,000, associated with treatment.“CSL Behring has […]