Day: September 23, 2014

FDA Hosts Patient-Focused Meeting

On Monday, September 22, several members of the bleeding disorders community came out to share their experiences with bleeding disorders treatment with the FDA.HFA worked with partners like NORD, PPTA, and NHF to ensure that our community was effectively represented. Patients and advocates of every age, every background, and with several different conditions came out to share […]

Leveling with the FDA About Hemophilia Inhibitors

On Monday, September 22, several members of the bleeding disorders community came out to share their experiences with bleeding disorders treatment with the FDA.HFA worked with partners like NORD, PPTA, and NHF to ensure that our community was effectively represented. Patients and advocates of every age, every background, and with several different conditions came out to share […]

HFA's Executive Director to FDA: Treatment is Not One Size Fits All

Several members of the bleeding disorders community came out to share their experiences with bleeding disorders treatment with the FDA.HFA worked with partners like NORD, PPTA, and NHF to ensure that our community was effectively represented. Patients and advocates of every age, every background, and with several different conditions came out to share with the FDA their […]

Adult Male Disccuses Pain Management and Treatment with FDA

On Monday, September 22, several members of the bleeding disorders community came out to share their experiences with bleeding disorders treatment with the FDA.HFA worked with partners like NORD, PPTA, and NHF to ensure that our community was effectively represented. Patients and advocates of every age, every background, and with several different conditions came out to share with […]

Adult Man Shares Seven Decades of Hemophilia Treatment with the FDA

Members of the bleeding disorders community came out to share their experiences with bleeding disorders treatment with the FDA.HFA worked with partners like NORD, PPTA, and NHF to ensure that our community was effectively represented. Patients and advocates of every age, every background, and with several different conditions came out to share with the FDA their hopes, […]

Blood Brother Shares Hemophilia Treatment Experiences With FDA

Members of the bleeding disorders community came out to share their experiences with bleeding disorders treatment with the FDA.HFA worked with partners like NORD, PPTA, and NHF to ensure that our community was effectively represented. Patients and advocates of every age, every background, and with several different conditions came out to share with the FDA […]