Promising Gene Therapy Results in Treating Hemophilia B
St. Jude Children’s Research Hospital announced the results of their ongoing gene therapy partnership with University College London and the Royal Free Hospital. The report indicates success in the trial, which used a modified adeno associated virus (AAV) 8 to deliver genetic material for making Factor IX in Hemophilia B patients.In this study, 10 patients […]
FitFactor Video: Putting A Face to Martial Arts
When considering a physical activity for themselves or their family members with a bleeding disorder, many people overlook the possibility of martial arts. It is a sport that can be considered for its many benefits beyond building muscle tone, flexibility and general health. Some of the biggest benefits that come from practicing any of the […]
Update #2: FDA will Review Study Suggesting Higher Inhibitor Incidence in PUPS
The medical journal, Blood, came out with a study called, Recombinant Factor VIII Products and Inhibitor Development in Previously Untreated Boys with Severe Hemophilia A. This study suggests that inhibitor incidence is higher in previously untreated patients (PUPs) with severe hemophilia A that are using Kogenate/Helixate. The Food and Drug Administration (FDA) and European Medicines Agency (EMA) have confirmed they will be […]
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