New Challenges

 Back in February Maddox’s provider suggested we try a new medicine. This medicine would allow him to be poked subcutaneously once a week, and with no need of factor replacement unless there is an emergency.After about six months on the new medication, we went in for Maddox’s yearly appointment, and removing his port was brought […]

HFA Awarded PCORI Grant to Engage Women in Research

Hemophilia Federation of America has received a Eugene Washington PCORI Engagement Award from the Patient-Centered Outcomes Research Institute for its FIRST (Females in Research Sharing and Translation) Project to improve opportunities for women to be engaged in patient-centered research.The capacity-building grant will support HFA’s FIRST Project which will begin by identifying how women are currently […]