Testimonials

HFA made me feel empowered during Sisterhood space, especially helping me advocate for myself as a woman and young adult with a bleeding disorder. HFA’s advocacy fly-in had a lasting impact on me, as it provided a unique opportunity to have my voice heard by allowing me to discuss real-world challenges faced by bleeding disorders patients with government representatives.

I just want to thank you so much for all your help with my requests through the Helping Hands Program. My new diagnosis has been a bit overwhelming, and you going above and beyond to help means a lot. So thank you for all you do.

HFA has been vital with support and performance for patients with bleeding disorders. I have felt their dedication and assistance in advocating for and educating families like ours.

Gracias a HFA y a sus programas de educación dirigidos a las mujeres con desórdenes de sangrado, puedo afirmar que no me he sentido sola en este viaje. HFA me ha dado la oportunidad de conocer muchas mujeres como yo y juntas hemos aprendido a abogar y trabajar para poder dejar un legado a las futuras generaciones.

HFA has given me tools and education to feel confident that my bleeding disorder is not a limitation to anything I want to do in life.

I had my left knee fully replaced, [due] to severe Hemophilia A. I have been on leave from work since then and finances are really tough. Your assistance is overwhelming appreciated and will go a long way in helping me with my recovery and getting back to work without worrying about the stress of finance. Thank you and God bless!

I was part of the first Hispanic Advocacy Group Training sponsored by HFA where I met members of the community from other states. It helps me to effectively advocate for my sisters and brothers of the bleeding disorders community.