Infusing Love: 504 Plans

Hello, my name is Lupe Torres! I would like to start by thanking everyone for the opportunity to let me share my experience with the 504 plans. First, here is a little bit about me and my family. I live in the city of Las Vegas, and I have three children, two sons and one […]

Infusing Love: Speaking from the Heart

In my family, we have always been very open about issues related to hemophilia. I already knew from a very young age that being the daughter of a person with this condition brought the chance that when I had male children they could be born with hemophilia; and if I have females, they could transmit […]

Infusing Love: Who Am I?

My last blog as all about the numerous transitions happening in my house. My son turned 18, went to a once a week prophy dosing (completely independent!), is getting ready to graduate from high school and soon will be leaving for college. Yikes! I am so often reminded lately of this quote that is 110% […]

Infusing Love: When Vacations Mean So Much More

Summer is finally here! We all know that means a lot of outdoor fun and vacations. For individuals with hemophilia, vacations can mean challenges. I remember when my son Michael was a little boy and traveling was a lot different than it is today. Michael is twenty-right years of age and has severe Hemophilia B […]

Infusing Love: By Erring You Learn

I can encourage you to be proactive parents and take your child’s bleedings seriously.—Tamara, hemophilia mom When I was in high school I was interested in taking Italian classes as I loved the language and had the dreamy idea of living one year in the beautiful Bel Paese. My dream never came true, however I […]

Infusing Love: We Are All Family

  Thank you for being a friend (if that song stays with you all day, you can thank me). A lot of the time we in the bleeding disorder community talk about it being a family. Here’s the thing: you all are my family. I have some blood family that I barely know, because I […]

Infusing Love: COVID-19 and A Bleeding Disorder

Hello, my name is Lupe Torres and I live in the city of Las Vegas, NV. I have three children: Alex (25), Jesse (19) and Michelle (24). My daughter has vWD type 1 and Factor V Leiden. My son Jesse has Factor V Leiden and a rare bleeding disorder. About a year ago when the […]

Infusing Love: A Changing World

The positive is that we have not lost contact and we are more united than ever. —Ana, hemophilia mom Hello. My name is Ana and I live in El Paso, Texas. Today’s topic that I want to share with you is undoubtedly about COVID-19. We all know that everything has changed because of the pandemic […]

Infusing Love: Gratitude

It has given us time together and a chance for him to open up and share and for that I am grateful!  — Jen, hemophilia mom There is a lot of “no” in a house where hemophilia lives. While I would like to think that myself and my husband have been good about keeping an […]

Infusing Love: Too Blessed to be Stressed

  “I had a lot of anxiety that I was sick and that people were placing fault or blame on me.” — Mily, hemophilia mom Winter can be a beast in New Jersey. Taking a moment to admire the beauty of snow calms me. However, it is crystal clear that some things do not calm us, and […]

Infusing Love: Accepting the Challenge

This blog was originally written in Spanish. To read in Spanish, select “Spanish” in Google Translate:  I am the mother of a 15-year-old girl, Yanira, with a rare bleeding disorder, severe factor V deficiency. Remembering how the process was to detect her condition and diagnosis reminds me of the distinguished courage she has had since […]

Infusing Love: Too Many Transitions

I know this is what we raise our children for – for them to leave the nest and fly on their own — I just never knew it was going to be so hard when it actually happened. My son, Nick, who is almost 18, started a Monday, Wednesday, Friday routine of prophylaxis when he […]

Infusing Love: Let Them Hurt

  Let’s talk about losing a child. I know, not a feel-good topic, but one I’m living with right now. The reason I blog, the reason I know why I even know about my own bleeding disorder is because I had a son. I say “had” because he died on Jan. 1, 2021. His name […]

Infusing Love: Mental Health is More Than Just a Buzz Phrase

Happy 2021 everyone! With this New Year comes a lot of hope and promises. It was a long 2020 with many life changes and stresses. I am the mother of a 28-year-old son, Michael, with severe hemophilia B and inhibitors due to allergic reactions to all factor 9 products. I know that sounds very stressful […]

Infusing Love: El Deporte Para Su Salud

Como saben soy mama de un niño de 11 años con hemofilia. Cuando mi niño fué creciendo empezó a aumentar de peso y en ocasiones presentaba dolores en sus tobillos. Yo como mamá súper protectora, (sí lo acepto, tengo que trabajar conmigo misma para no transmitirle miedo a mi niño) no consideraba ningún deporte como […]

Infusing Love: From My Son’s Point of View

It’s been a year since the first case of COVID-19 was reported in the United States. The ever-evolving coronavirus situation can be a bit intimidating. With social distancing and quarantine are becoming frequent vocabulary words in our everyday conversations. The whole thing can feel downright overwhelming. Answer me this question…when did feeling exhausted and overwhelmed […]

Infusing Love: Asomos de romance inesperados

Mi esposo y yo nunca pensamos que terminaríamos el uno con el otro como compañeros de vida. Teníamos en común que los dos estábamos haciendo segundos bachilleratos en música en el Conservatorio. Fue allí donde nos conocimos, pero en todo lo demás, parecíamos ser totales opuestos. A pesar de mi estatura sobre promedio, yo era […]

Infusing Love: Un año nuevo saludable

¡Hola, mis queridas madres y Feliz año nuevo para todas! ¿Has notado el cambio en las preferencias en alimentos en los últimos años? Hoy les hablaré de lo beneficioso que es comer saludable.  De porque tener hábitos alimentarios saludables nos alarga la vida para disfrutar a nuestras futuras generaciones. Nuestros hábitos alimentarios, en gran medida, […]

Infusing Love: A Pillar of Strength

The staff of Hemophilia Federation of America and Infusing Love: A Mom’s View bloggers extend condolences to Maryann on the death of her son, Max. There are times as a hemophilia mom that you feel as though you can handle anything, like you could take on the world and make it a better place. Then there […]

Infusing Love: Cirugía en Tiempos de Pandemia

¡Saludos nuevamente a todas las extraordinarias mamás de nuestra comunidad, un fuerte abrazo desde la distancia! Para los que no me conocen, tengo un niño de 11 años con hemofilia A, que se llama Iván Manuel. Hoy les escribo, pensando en los diferentes retos que esta pandemia nos ha traído a nuestras vidas. Desde los estudios […]

Infusing Love: ¿El Amor Da Empoderamiento?

Hola, mis amigas de Infusing Love Moms Blog. Soy Ana, madre de un hijo con hemofilia Tipo B, deficiencia de Factor IX moderado y vivo en El Paso, Texas. Hoy quiero platicar con ustedes de el amor, el agradecimientoy el perdón. El amor es, quizá, el sentimiento mas hermoso que el ser humano pueda experimentar. […]

Infusing Love: Boys to Men

  I have been “Infusing Love” into my son Marques for the past 18 years! I have not only been infusing him with factor, so his blood clotting levels are normal, but I have tried to infuse him with the education he needs to live a long life with hemophilia. I pray! As hemophilia moms, […]

Infusing Love: My Quarantine Teaching Experience

Remote learning causes concerns for students with disabilities. Because of COVID-19, I found myself using technology as I teach and learn. I used to take for granted toilet paper, paper towel, hand sanitizer, rubber/paper gloves, rubbing alcohol, bleach and masks because it was always there at my reach. Now I have found myself shopping for these things. […]

Infusing Love: The Other Side Effects

There are new bleeding disorder side effects cropping up all the time. By side effects, I mean the extraneous things we have to manage such as insurance, genotyping and product choice. In a time before all the advancements, a side effect was learning to be an IV nurse and find a vein on a toddler,  […]

Infusing Love: Living with a Bleeding Disorder in the Pandemic

Since March 2020 we have had to get used to a new reality where taking care of our kids’ already special health situation has turned even more complicated. How to handle frequent visits to the hospital if the hospital doesn’t seem like a safe place? Doing virtual schooling had to grow on us, but we […]

Infusing Love: All the Adult Things

My son, Michael, has severe hemophilia B. He is soon to be 28 years old. Wow! That time flew by! I remember the day we found out he had hemophilia. He was 11 days old. We were shocked, scared and ready to take on this challenge life had given us.  We educated ourselves and our […]

Infusing Love: We Are Strong!

Strong. Every January I reflect on the year to come. I chose a word based on something personal, either to myself or to our family. This year I chose the word: Strong. I chose that word specific to my goals for the year. I’ve been a consistent runner since 2015. In fact, I love it […]

Infusing Love: The Power of Symposium

  Attending HFA’s Symposium has always fascinated me. I have attended a few symposiums with my family: St. Louis, Cleveland, Las Vegas, and San Diego. During symposium, I networked with individuals who were in various fields: social workers, physicians, nurses, physical therapists, and patients.  Days were filled with inspirational kickoff and educational breakout sessions. There […]

Infusing Love: How Do Moms “Do” a Virtual Symposium?

  We are now four or five months into this very bizarre time of the COVID-19 Pandemic. If you’re like me,  you’re not getting any more used to this “new normal” but rather more than ever, ready for it to be over. While we may be ready to get back to life the way it […]

Infusing Love: You Are Missed

You know what I miss? You. I miss you. I miss looking into your eyes, I miss tearing up when I try to explain my struggles and listen to yours. I miss smiling with you when I tell you about my adventures and you tell me yours. I’ve been a part of the bleeding disorder […]