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News Categories: Mom's Blog: Infusing Love

July 28, 2021

Hello, my name is Lupe Torres! I would like to start by thanking everyone for the opportunity to let me share my experience with the 504 plans. First, here is a little bit about me and my family. I live in the city of Las Vegas, and I have three children, two sons and one […]

News Categories: Mom's Blog: Infusing Love

July 20, 2021

In my family, we have always been very open about issues related to hemophilia. I already knew from a very young age that being the daughter of a person with this condition brought the chance that when I had male children they could be born with hemophilia; and if I have females, they could transmit […]

News Categories: Mom's Blog: Infusing Love

July 14, 2021

My last blog as all about the numerous transitions happening in my house. My son turned 18, went to a once a week prophy dosing (completely independent!), is getting ready to graduate from high school and soon will be leaving for college. Yikes! I am so often reminded lately of this quote that is 110% […]

News Categories: Mom's Blog: Infusing Love

July 6, 2021

Summer is finally here! We all know that means a lot of outdoor fun and vacations. For individuals with hemophilia, vacations can mean challenges. I remember when my son Michael was a little boy and traveling was a lot different than it is today. Michael is twenty-right years of age and has severe Hemophilia B […]

News Categories: Mom's Blog: Infusing Love

July 1, 2021

I can encourage you to be proactive parents and take your child鈥檚 bleedings seriously.鈥擳amara, hemophilia mom When I was in high school I was interested in taking Italian classes as I loved the language and had the dreamy idea of living one year in the beautiful Bel Paese. My dream never came true, however I […]

June 24, 2021

  Thank you for being a friend (if that song stays with you all day, you can thank me). A lot of the time we in the bleeding disorder community talk about it being a family. Here鈥檚 the thing: you all are my family. I have some blood family that I barely know, because I […]

News Categories: Mom's Blog: Infusing Love

June 17, 2021

Hello, my name is Lupe Torres and I live in the city of Las Vegas, NV. I have three children: Alex (25), Jesse (19) and Michelle (24). My daughter has vWD type 1 and Factor V Leiden. My son Jesse has Factor V Leiden and a rare bleeding disorder. About a year ago when the […]

June 10, 2021

The positive is that we have not lost contact and we are more united than ever. 鈥擜na, hemophilia mom Hello. My name is Ana and I live in El Paso, Texas. Today’s topic that I want to share with you is undoubtedly about COVID-19. We all know that everything has changed because of the pandemic […]

June 2, 2021

It has given us time together and a chance for him to open up and share and for that I am grateful! 聽鈥 Jen, hemophilia mom There is a lot of 鈥渘o鈥 in a house where hemophilia lives. While I would like to think that myself and my husband have been good about keeping an […]

News Categories: Mom's Blog: Infusing Love

May 26, 2021

  鈥淚 had a lot of anxiety that I was sick and that people were placing fault or blame on me.鈥 鈥 Mily, hemophilia mom Winter can be a beast in New Jersey.聽Taking a moment to admire the beauty of snow calms me.聽However, it is crystal clear that some things do not calm us, and […]

News Categories: Mom's Blog: Infusing Love

May 12, 2021

This blog was originally written in Spanish. To read in Spanish, select “Spanish” in Google Translate:聽 I am the mother of a 15-year-old girl, Yanira, with a rare bleeding disorder, severe factor V deficiency. Remembering how the process was to detect her condition and diagnosis reminds me of the distinguished courage she has had since […]

News Categories: Mom's Blog: Infusing Love

March 24, 2021

I know this is what we raise our children for 鈥 for them to leave the nest and fly on their own 鈥 I just never knew it was going to be so hard when it actually happened. My son, Nick, who is almost 18, started a Monday, Wednesday, Friday routine of prophylaxis when he […]

News Categories: Mom's Blog: Infusing Love

March 17, 2021

  Let鈥檚 talk about losing a child. I know, not a feel-good topic, but one I鈥檓 living with right now. The reason I blog, the reason I know why I even know about my own bleeding disorder is because I had a son. I say 鈥渉ad鈥 because he died on Jan. 1, 2021. His name […]

News Categories: Mom's Blog: Infusing Love

March 10, 2021

Happy 2021 everyone! With this New Year comes a lot of hope and promises. It was a long 2020 with many life changes and stresses. I am the mother of a 28-year-old son, Michael, with severe hemophilia B and inhibitors due to allergic reactions to all factor 9 products. I know that sounds very stressful […]

February 23, 2021

Como saben soy mama de un ni帽o de 11 a帽os con hemofilia. Cuando mi ni帽o fu茅 creciendo empez贸 a aumentar de peso y en ocasiones presentaba dolores en sus tobillos. Yo como mam谩 s煤per protectora, (s铆 lo acepto, tengo que trabajar conmigo misma para no transmitirle miedo a mi ni帽o) no consideraba ning煤n deporte como […]

February 10, 2021

It鈥檚 been a year since the first case of COVID-19 was reported in the United States. The ever-evolving coronavirus situation can be a bit intimidating. With social distancing and quarantine are becoming frequent vocabulary words in our everyday conversations. The whole thing can feel downright overwhelming. Answer me this question鈥hen did feeling exhausted and overwhelmed […]

February 3, 2021

Mi esposo y yo nunca pensamos que terminar铆amos el uno con el otro como compa帽eros de vida. Ten铆amos en com煤n que los dos est谩bamos haciendo segundos bachilleratos en m煤sica en el Conservatorio. Fue all铆 donde nos conocimos, pero en todo lo dem谩s, parec铆amos ser totales opuestos. A pesar de mi estatura sobre promedio, yo era […]

January 13, 2021

隆Hola, mis queridas madres y Feliz a帽o nuevo para todas! 驴Has notado el cambio en las preferencias en alimentos en los 煤ltimos a帽os? Hoy les hablar茅 de lo beneficioso que es comer saludable.聽 De porque tener h谩bitos alimentarios saludables nos alarga la vida para disfrutar a nuestras futuras generaciones. Nuestros h谩bitos alimentarios, en gran medida, […]

January 6, 2021

The staff of Hemophilia Federation of America and Infusing Love: A Mom’s View bloggers extend condolences to Maryann on the death of her son, Max. There are times as a hemophilia mom that you feel as though you can handle anything, like you could take on the world and make it a better place.聽Then there […]

December 30, 2020

隆Saludos nuevamente a todas las extraordinarias mam谩s de nuestra comunidad, un fuerte abrazo desde la distancia! Para los que no me conocen, tengo un ni帽o de 11 a帽os con hemofilia A, que se llama Iv谩n Manuel.聽Hoy les escribo, pensando en los diferentes retos que esta pandemia nos ha tra铆do a nuestras vidas. Desde los estudios […]

December 9, 2020

Hola, mis amigas de Infusing Love Moms Blog. Soy Ana, madre de un hijo con hemofilia Tipo B, deficiencia de Factor IX moderado y vivo en El Paso, Texas. Hoy quiero platicar con ustedes de el amor, el agradecimientoy el perd贸n. El amor es, quiz谩, el sentimiento mas hermoso que el ser humano pueda experimentar. […]

November 25, 2020

  I have been 鈥淚nfusing Love鈥 into my son Marques for the past 18 years! I have not only been infusing him with factor, so his blood clotting levels are normal, but I have tried to infuse him with the education he needs to live a long life with hemophilia. I pray! As hemophilia moms, […]

October 28, 2020

Remote learning causes concerns for students with disabilities.聽Because of COVID-19, I found myself using technology as I teach and learn.聽I used to take for granted toilet paper, paper towel, hand sanitizer, rubber/paper gloves, rubbing alcohol, bleach and masks because it was always there at my reach. Now I have found myself shopping for these things. […]

October 21, 2020

There are new bleeding disorder side effects cropping up all the time. By side effects, I mean the extraneous things we have to manage such as insurance, genotyping and product choice. In a time before all the advancements, a side effect was learning to be an IV nurse and find a vein on a toddler,聽 […]

October 14, 2020

Since March 2020 we have had to get used to a new reality where taking care of our kids鈥 already special health situation has turned even more complicated. How to handle frequent visits to the hospital if the hospital doesn鈥檛 seem like a safe place? Doing virtual schooling had to grow on us, but we […]

August 13, 2020

My son, Michael, has severe hemophilia B. He is soon to be 28 years old. Wow! That time flew by! I remember the day we found out he had hemophilia. He was 11 days old. We were shocked, scared and ready to take on this challenge life had given us.聽 We educated ourselves and our […]

August 4, 2020

Strong. Every January I reflect on the year to come. I chose a word based on something personal, either to myself or to our family. This year I chose the word: Strong. I chose that word specific to my goals for the year. I鈥檝e been a consistent runner since 2015. In fact, I love it […]

July 29, 2020

  Attending HFA鈥檚 Symposium has always fascinated me. I have attended a few symposiums with my family: St. Louis, Cleveland, Las Vegas, and San Diego. During symposium, I networked with individuals who were in various fields: social workers, physicians, nurses, physical therapists, and patients.聽 Days were filled with inspirational kickoff and educational breakout sessions. There […]

July 15, 2020

  We are now four or five months into this very bizarre time of the COVID-19 Pandemic. If you鈥檙e like me, 聽you鈥檙e not getting any more used to this 鈥渘ew normal鈥 but rather more than ever, ready for it to be over. While we may be ready to get back to life the way it […]

July 1, 2020

You know what I miss? You. I miss you. I miss looking into your eyes, I miss tearing up when I try to explain my struggles and listen to yours. I miss smiling with you when I tell you about my adventures and you tell me yours. I鈥檝e been a part of the bleeding disorder […]


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