Tell Congress: No Healthcare Cuts
“In the 1980s, FDA-approved blood products, contaminated with HIV, killed my husband, a hemophiliac. Today, I have countless of HIV-positive friends whose lives depend on affordable healthcare to not only treat their bleeding disorders, but to stay alive with AIDS-related therapies. To be frank, robbing them — and all Americans benefitting from Medicaid and the ACA — will lead to unnecessary suffering and deaths.”
Kathy – Florida
Tell Congress: No Healthcare Cuts
“For someone like myself who is low income, but not old enough to be on Medicare, affordable healthcare is crucial for treatment of my bleeding disorder. Without proper medical treatment of an injury or a joint bleed, my hemophilia will cause long term health issues that in the long run will be much more expensive to treat than getting the right treatment now.”
Curtis – Minnesota
Tell Congress: No Healthcare Cuts
“People with bleeding disorders want to be active, contributing, impactful members of society. Access to affordable healthcare keeps us healthy and enables us to give to our country like everyone else.”
Shellye – California
Tell Congress: No Healthcare Cuts
“Access to affordable healthcare is critical to my family and the bleeding disorders community, because without it, life-saving treatments like recombinant factor become financially out of reach. For those of us with bleeding disorders, missing even a single dose can mean joint damage, internal bleeding, or a medical emergency – making consistent, affordable care not just important but essential for survival and quality of life.”
Sean – California
Tell Congress: No Healthcare Cuts
“Due to the high cost of medication, affordable healthcare is critical for community well-being. Lack of access to affordable healthcare compromises the ability to live a normal life, hindering access to necessary amenities and impacting overall health. Ensuring affordable healthcare is paramount,”
John – California
Tell Congress: No Healthcare Cuts
“When people like me and my dad can afford the necessary checkups and medications to adequately treat our condition, we are able to avoid debilitating conditions such as degenerative joint disease. This means that I can be a bedside nurse for decades to come, and my father can care for and play with his grandkids. All we want is affordable healthcare, so we can live a meaningful life with a condition neither of us asked for, to play the hand we were dealt without our hands being tied behind our backs.”
Alyce – Ohio
Tell Congress: No Healthcare Cuts
“Access to affordable healthcare is vital for families like mine, because hemophilia B isn’t optional – without treatment, even minor injuries can be life-threatening. Lifesaving medication is incredibly expensive, and without coverage, it’s simply out of reach for us. Cutting healthcare access puts lives at risk and creates fear and instability for an already vulnerable community.”
Amanda – Louisiana
Tell Congress: No Healthcare Cuts
“Access to affordable healthcare is critical to my family so that my husband, with severe hemophilia, can pursue a successful career, provide for his family, and play with our kids without worrying about debilitating internal bleeds.”
Emily – Minnesota
Tell Congress: No Healthcare Cuts
“The care for hemophilia, VWD and other bleeding disorders has improved dramatically in the last few decades, and this progress was built on an amazing clinical research infrastructure that was funded by the government. The management of bleeding disorders is expensive, and it isn’t feasible to self-fund this healthcare. We should not turn back the clock on care for hemophilia and bleeding disorders. We should be celebrating the progress and continue to push to ensure all of our brothers and sisters receive optimal care.”
Robert – Georgia
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