Page 3 - AnnualReport2016

A Message from the Board Chair

Our organization was created during a time of confusion within the bleeding disorders com-
munity as HIV and hepatitis ran rampant in the blood supply. During this period, many in the
community felt they were not getting needed answers to explain how such a tragedy could occur.
This truly grassroots, community-led effort gave a unified voice to the voiceless.
Today, we are the national organization serving as a trusted voice for people living with bleed-
ing disorders across America. We assist and advocate for patients and their families and remain
dedicated to serving as the voice for their needs. Through our programs, services, and outreach, we
provide support and information to patients and their families so they can become stronger, more
resilient advocates, continuously improving their quality of life and health outcomes.
As we look forward, we plan to carry on this mission, expanding our programs at the local level,
increasing education through our digital and print media presence, and offering an innovative ini-
tiative through our new research unit, with programming that is community centered, community
focused, and community driven.
Living with hemophilia, von Willebrand Disease, or any other bleeding disorder is a lifelong journey
that requires diligence and flexibility in dealing with the challenges along the way. It’s not always
an easy path to take, but our organization is committed to lessening and even eliminating the chal-
lenges families face everyday.
Our community members are steadfast in their resolve and their importance in policy conversations
is absolute. I hope as you reflect upon the great work we did in 2016, you’ll consider the ways you can
support our efforts in the year ahead.
Together, we will accomplish great things.

Tracy Cleghorn
Chair, Board of Directors