Page 9 - HFA Annual Report 2015

Year in Review | Project CALLS

n August 2015, HFA launched Where did participants live? Are participants being mandated to use
Ian initiative designed to help a particular specialty pharmacy?
the bleeding disorders commu- No Response 5%
nity collect data and stories about Northeast Didn’t Know
how changes in insurance com- 18% 8%
pany policies are impacting the Midwest
care of those with bleeding disor- South 18%
61%
ders. HFA started Project CALLS 32% Yes
No
in order to create a more accurate 55%
picture of the types of insurance is- West 3%
sues encountered by the bleeding
disorders community. Through the What types of plans did participants have?
community’s participation in Proj-
ect CALLS, HFA will continue to Combination Not Sure Marketplace Plan Did participants’ insurance issue
3%
lead to delayed care?*
collect stories from the bleeding of Plans 8% (Exchange) 8%
disorders community across the Military TRICARE/
VA/Champ VA
country, collate the data, identify 3%
trends, and use the information to Medicare 5% No
build cases for change. 37%
Medicaid
13% Yes
Commercial/Private 63%
(includes Employer)
60%

“ My son orders his factor as instructed from our new Specialty Pharmacy, but the
pharmacy ships later than requested and sometimes not at all. This has caused him to
miss treatment, experience a bleed, and visit the doctor. ”
“ Insurance refuses to cover home infusion per information from the manufacturer. ”