2026 Annual Award Winners
HFA announced its annual award winners at Symposium in New Orleans. This year’s awards and winners include: Charles Stanley Hamilton Legacy Award This award is for extraordinary lifetime service that encompasses national volunteerism, professionalism and leadership. Charles was a Louisiana native who suffered from severe hemophilia A and who passed far too soon. He was the son […]
How HFA’s New LMS Platform Will Benefit the Community
HFA Launches New Online Learning Platform to Provide Innovative Learning to Patients, Caregivers & More By Emily A. Roush, HFA’s Learning Central Manager Since 2020, online learning has transformed from a temporary solution for students to learn and organizations to communicate into a lasting and essential part of education, including education for the patient community. […]
Member Organization Spotlight: The Louisiana Hemophilia Foundation
The Louisiana Hemophilia Foundation (LHF) is based in Louisiana. Currently, it operates with a dedicated team of two staff members and 12 core volunteers who are passionate about supporting individuals and families affected by bleeding disorders. Founded in 1976, LHF has grown to serve approximately 894 individuals and families across both Louisiana and Mississippi. Although […]
A Shared Experience About Periodontitis and Bleeding Disorders
By David Huskie, Board Member, HFA In 1985, my wife and I were dealing with the medical and insurance challenges for a two-year-old with severe hemophilia. We gave little thought to finding a dentist who would treat our son and understand the complications of a bleeding disorder. This was also during the AIDS crisis, which […]
Employee Spotlight
At Hemophilia Federation of America, our strength lies in the people behind the mission—individuals who bring purpose, empathy, and relentless drive to every aspect of our work. Each summer, we shine a light on a member of our team whose passion fuels progress and whose story inspires us all. From advocacy to education, from operations […]
Dr. Dana Kuhn: Sharing His Thoughts in a Letter to our Community
By Dana Kuhn, Ph.D. To the Bleeding Disorders Community, As a legacy leader in this community, especially during the tumultuous years (1990-1995) where this community united to take on the US government, pharmaceutical companies, and blood collection businesses, for the sake of blood safety, I am very concerned that we stay vigilant and protect the […]
Running Against the Odds: The Journey of Skyler Tulley
By Skyler Tulley When Skyler Tulley laces up his running shoes, he’s not just preparing for another long run—he’s pushing against the limits that his body has tried to set for him since birth. Tulley was born with severe Hemophilia B, a rare bleeding disorder caused by a deficiency of clotting factor IX. For most […]
What’s Coming in 2026 — and Why Every Advocate Matters
In early July of this year, Congress passed H.R. 1 — nicknamed the “One Big Beautiful Bill Act.” It’s a sweeping law that rewrites large parts of Medicare, Medicaid, and the Affordable Care Act. Some changes started right away, but the most dramatic ones will hit in 2026 and beyond. Supporters call it “streamlining.” But […]
Why AI Matters for HFA and the Community
By Brent Tritt, Vice President of Information Technology, HFA AI isn’t just a buzzword for technology companies’ offerings and efforts, but there’s a growing role for artificial intelligence in mission-driven organizations as well. Helping people with hemophilia and their families access resources, strengthen their voices, and build better communities is what HFA is about. AI […]
Why Copay Fairness Matters for the Bleeding Disorders Community
For people living with bleeding disorders, access to treatment isn’t optional, it’s life-sustaining. Yet every year, too many individuals and families are forced to navigate a healthcare system that makes essential care harder to afford, harder to access, and harder to sustain. At HFA, we believe in building clear pathways to care: systems that are […]
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