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Bleeding Disorders Alphabet Soup: What Do These Letters Mean?

Thursday, June 24 | 4:00 PM – 5:00 pm ET

Zoom Webinar

Acronyms abound in the bleeding disorders world – how do you make sense of FVIII, FIX, vWF, QoL, HCV, MASAC, ISTH, EHC, AAV and the plethora of others? Learn more about what these letters means and what they represent in this fun, interactive session.

Presenters

Robert Sidonio, MD

Dr. Sidonio is an Associate Professor of Pediatrics, Emory University SOM, Clinical Director of the Hemophilia Treatment Center and the Associate Director of Hemostasis and Thrombosis, Department of Pediatrics, Children’s Healthcare of Atlanta. The focus of his clinical research career has been on understanding the prevalence of congenital bleeding disorders such as low VWF, qualitative platelet disorders or hemophilia carriage in adolescent girls with heavy menstrual bleeding and the diagnosis and management of females with bleeding disorders. Furthermore Dr. Sidonio is also experienced with conducting and overseeing large clinical trials (Emicizumab PUP and Nuwiq ITI study, MOTIVATE study) focused on hemophilia A and inhibitors and various surveillance studies (ATHN 9, Mexico Inhibitor study). He is currently a board member of ATHN and MASAC and medical advisor to HFA.

Miriam Goldstein

Miriam is Director of Policy and Principal Legal Counsel with HFA. Miriam lives in Arlington, Virginia, and is the mother of two adult sons with hemophilia. Before joining HFA, Miriam worked as a lawyer with the federal government, served for many years on the board of her local hemophilia association (HACA), and volunteered with the Committee of Ten Thousand.

 

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