Bleeding Disorders Organizations Introduces Joint Statement Supporting Bi-partisan Alexander-Murray Legislation

Advocacy News

Click here for the combined issue statement from the Coalition for Hemophilia B, the Hemophilia Federation of America, the National Hemophilia Foundation and the Hemophilia Alliance supporting bi-partisan Alexander-Murray Legislation.
(Full text available in pdf and below)

People with Hemophilia and Other Bleeding Disorders Urge their Senators to Support Alexander-Murray Market
Stabilization Legislation

Senators Lamar Alexander (R-TN) and Patty Murray (D-WA) have released bipartisan legislation that
seeks to stabilize the individual health insurance market. The National Hemophilia Foundation,
Hemophilia Federation of America, Coalition for Hemophilia B, and Hemophilia Alliance – which
represent people with hemophilia, von Willebrand Disease, and other bleeding disorders and the
hemophilia treatment centers (HTCs) that care for them – are united in supporting this first step in
ensuring market stabilization and ask Senators to co-sponsor and support this proposal.
People with hemophilia and other bleeding disorders live with a painful, lifelong, chronic condition that
requires expensive medication and specialized care provided by HTCs and other specialists. We support
Alexander-Murray, as currently drafted, because it attempts to strengthen the individual insurance market for all Americans, including those with expensive, chronic conditions. In particular, we support this legislation because it:

  • Appropriates the cost-sharing reductions (CSR) payments, which are expected to lower
    premium costs;
  • Reinstates funds for outreach and enrollment activities, which will increase enrollment in health
    insurance; and
  • Streamlines the 1332 state waiver process to facilitate state innovation while
    maintaining patient protections, especially for low-income people and individuals with serious
    health care conditions.

Our community members will suffer without access to comprehensive, affordable insurance. As a result,
we support Alexander-Murray as a critical first step towards stabilizing health insurance markets and
ensuring access to care for our patient community. The bleeding disorders community urges Senators to
support the Alexander-Murray legislation!