Shelly Reed

Shelly Reed is an active member of the bleeding disorders community, living with von Willebrand disease. Her journey began at age nine when she attended Camp Bold Eagle, a summer camp for children affected by bleeding disorders. That early experience sparked a lifelong commitment to advocacy, education, community building, and service.

Shelly began her volunteer work with the Great Lakes Hemophilia Foundation, where she served as a youth representative on the board, and later became involved with the Wisconsin Bleeding Disorders Network. She went on to take on national leadership roles with the National Hemophilia Foundation (NHF), serving as co-chair of the National Youth Leadership Institute (NYLI) at its inception in 2004. She also played a key role on NHF’s Victory for Women Task Force, helping to design inclusive initiatives that advanced community engagement and gender equity.

Her leadership extends globally through her work with the World Federation of Hemophilia (WFH), where she served as a U.S. Ambassador at multiple congresses and later as a member of the WFH USA Board of Directors for ten years. She is also a recipient of the Susan Skinner Memorial Fund Scholarship.

Professionally, Shelly is a Senior Training Specialist at HUB International, bringing over 15 years of experience in talent development. In addition, she is President of the Association for Talent Development (ATD) Nashville Chapter and serves on ATD’s Chapter Recognition Committee.

Shelly resides in the Nashville, Tennessee area and remains deeply committed to advancing education, advocacy, and community within the bleeding disorders community. She currently serves as a Legislative Ambassador for the Hemophilia Federation of America and as a Lived Experience Expert on the National Bleeding Disorders Foundation’s Research Advisory Council.