La Menstruación es un Proceso Natural como Cualquier Otro
Por: Andy Anderson y Martha Boria, escritores del personal“Ahora eres una mujer”. “Aquà están las toallas higiénicas”. “Puedes sostener una toalla de agua caliente en el estómago por los dolores”. ¿Suena esto familiar? Para muchos de nosotros, hablar de perÃodos era solo algo que podÃamos hacer con mamá. No lo discutimos en la escuela o […]
Medicare 101: Who's Paying for Your Care?
By: Kimberly Ramseur, Staff WriterWith all the talk about health care financing, it is easy to get confused and overwhelmed with all the information being disseminated. If an individual falls under one of the following, he or she may be eligible for Medicare, a national health insurance program administered by the Center for Medicare and […]
Advocate Finds Her Voice with New Council
Advocacy Leadership Council member shares her experience at HFA’s 2019 Patient Fly-In By: Natalie Parker, Guest Writer I was nervous before walking into a Congressional office. The U.S. Capitol is huge! I didn’t know what to expect and I wasn’t sure they would listen to me. After all, legislators and their staff meet with numerous […]
Executive Corner
Dear Friends,For nearly 11 years Hemophilia Federation of America has had the same leadership guiding and taking the organization where the community has requested. Throughout this time, HFA has grown by leaps and bounds, not only in the size of the organization, but more importantly in what we are able to offer the community and […]
A Patient’s Perspective on a Fresh Osteoarticular Allograft
By: Christopher QuesenberryHaving a rare condition like hemophilia has never held me back from pursuing an active lifestyle. The demands of maintaining a high level of activity, however, ultimately resulted in joint failure. My right knee has been considered a “target joint” since I was in the fifth grade. By the time I reached adulthood, […]
How I Cope with Pain
Note:Â This article is for educational purposes only and is not intended to be construed as direct medical advice or the official opinion/position of HFA, its staff, or its Board of Directors. Readers are strongly encouraged to discuss their own medical treatment with their healthcare providers. Pain is a serious medical concern in our country. Approximately […]
What is Helping Hands?
By Elaine Chan, MSW, MPHAt any point, families living with a bleeding disorder can experience financial hardship because of their medical situation. HFA’s Helping Hands Program has become a safety net for thousands of families throughout the years. Helping Hands has provided many families with assistance for expenses like housing, utilities, and transportation. In addition […]
Dateline: Ask the CDC – What's von Willebrand Disease?
Erik von Willebrand, a Finnish physician, noticed several young girls in one family shared symptoms of a bleeding disorder. The year was 1924, and von Willebrand recognized that the girls’ symptoms were different from those of someone with hemophilia, a disease mostly affecting males. He called this new disease pseudohemophilia, or false hemophilia, but others […]
Hemophilia: Not an Excuse to Be a Couch Potato
By Michael Zolotnitsky, PT, DPTGrowing up with hemophilia made waking up with bruises, joint pain, or the inability to bear weight on my ankles a normal occurrence. Time and time again, my mother had to drive me to the local hematology clinic to have factor infused. I did not feel like a normal child. I let […]
Recognizing Bleeding Disorders Awareness Month
Note: The following appears in our Spring 2016 edition of Dateline Federation. Please see the full issue for all the amazing community support shown for Bleeding Disorders Awareness Month! For the past 30 years, the bleeding disorders community has unofficially recognized Hemophilia Awareness Month during the month of March. The name originated from a proclamation made by […]
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