Dear Addy: In-District Legislative Meetings
Dear Addy, With Congress in recess, how can I continue to participate in legislative advocacy? Signed, Bleeding Disorders Advocate Dear Bleeding Disorders Advocate, Every August, the United States Congress embarks on a recess, temporarily adjourning its legislative business and allowing members to return to their home states and districts. The August recess tradition serves as […]
Dear Addy: Finding Community
Dear Addy, I am the only person I know who has a bleeding disorder. I don’t know any other patients at my HTC, and I live pretty far away from my nearest member organization, so I don’t usually get the chance to attend community events. I want to connect with others in the community, but […]
Dear Addy: Eager to Advocate
Dear Addy, I am in my teens and am looking to get involved in advocacy within the bleeding disorders community. Can you share any tips on how to get involved and ways to learn more?Sincerely, Eager Teen Sincerely, Eager Teen Dear Eager Teen, Advocacy is a great way for our youth to engage with the […]
Dear Addy: Financial Assistance
Dear Addy, I am a full-time university student who was recently diagnosed with a bleeding disorder. While I’m relieved I finally have a diagnosis, getting to that point was time-consuming – and expensive! Between doctors’ visits, working part-time, and attending classes, I am still struggling. Does HFA have any resources it can recommend to someone […]
Dear Addy: International Travel
I recently travelled internationally and, I have to say, it was not easy traveling with my factor. My bag was searched over three times and I was almost denied entry to the plane. I made sure to travel with a travel letter and my factor was in its original prescription packaging. How can I ensure […]
Dear Addy: Unwinding Medicaid
Dear Addy, I’ve heard that states have begun unwinding Medicaid, what does that mean for me and my family? Will we still have coverage, and what do we need to do? Signed, Unwinding Undertaker Hi Undertaker, You may have heard about Medicaid unwinding/ the public health emergency/eligibility redeterminations in the past few months. We understand […]
Dear Addy: Project CALLS
Dear Addy, I recently attended an event and learned about submitting issues with my insurance to HFA’s Project CALLS. I have an insurance issue, however, I still have some questions about how CALLS works and what happens when I submit an issue. Can you explain the process? Signed, CALLS Quandary Dear Quandary, You are not […]
Dear Addy: Pharmacy Choice
A community member writes in about their struggles with a friend who is pressuring them to switch to the specialty pharmacy that they work for. Addy share tips with writer as how to try to both keep their friendship and their pharmacy.
Dear Addy: Giving Back
Dear Addy, I want to give back this holiday season, but I’m not sure how. Can you recommend ways to be more involved in my community? Signed, Inspired to Serve Dear Inspired, The holiday season is a good time to reflect on giving to a cause or serving those in need. There are many ways […]
Dear Addy: Holiday Self-care
Dear Addy, With the holidays ahead of us, I’m trying to focus on taking care of myself. However, I struggle to do this between family, work, and social obligations. Can you provide some tips on self-care? Signed, Stressing about Self-Care Dear Stressing, Good for you for starting the holiday season off by focusing on yourself! […]
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