Answering Back to School Questions
When the first school bell rings each year, parents and children with bleeding disorders start to answer a large number of questions. Thankfully, HFA is here with plenty of resources to help you with those answers. Under our ‘Resources & Toolkits’ tab, we have a complete “Back to School” page. There you will find information […]
Don’t Leave Home Without It
If you’re over 40, you will likely remember a series of commercials featuring various semi-famous actors and celebrities telling you about the need to carry the American Express card, and the famous catchphrase “Don’t Leave Home Without It!” If you are of roughly that same generation or older you may have strong opinions on medical […]
HFA Proud to Receive Top Rating from Charity Navigator
Hemophilia Federation of America is proud to announce its strong financial health and ongoing effectiveness and reliability have helped it earn a four-star rating from Charity Navigator, one of the nation’s largest charity evaluators, providing donors with unbiased, thorough and credible ratings of more than 230,000 organizations since 2001. This rating designates HFA as an […]
Bleeding Disorders Organizations Partner to Prepare for Coming Medicaid Changes
Download the statement here. Medicaid work reporting requirements, enacted last year as part of HR 1 (the One Big Beautiful Bill Act), will soon go into effect. The national bleeding disorders organizations want to update you on what we are doing to prevent coverage losses – and outline our plans to provide the community with […]
The Enduring Legacy of Bleeding Disorders Camp
Summer is a time of continuing education. A time to take a break from the tasks that are required of you and learn something new. In our community, summer’s continuing education generally involves the rite of passage of heading off to bleeding disorders camp. As we move deeper into the summer, kids and teens with […]
HFA Provides Update on Historical Archives Project
At our 2026 Symposium in New Orleans, Dr. Dana Kuhn shared his personal journey and experience during the “bad blood” era, and brought forward the memories of those who worked so hard and committed so much for the community, and the need that HFA never forget their contributions and sacrifices. This also raised questions about the […]
HFA Joins 47 Other Organizations to Warn of Massive Coverage Losses Under Medicaid Ruling
Below is a sign-on letter Hemophilia Federation of America participated in: Washington, D.C. — On June 3, 48 nonprofit, nonpartisan patient organizations issued a statement in response to the interim final rule implementing the new Medicaid work reporting requirement provisions in Public Law 119-21. “Throughout the legislative process, lawmakers repeatedly promised that the patients […]
May is Hepatitis Awareness Month
The Centers for Disease Control and Prevention designated the month of May as Hepatitis Awareness Month in 2001 to bring awareness and attention to those living with viral hepatitis. In the 1980s and ’90s, thousands of people with hemophilia contracted HIV and hepatitis C (HCV) from the contaminated blood supply transmitted by clotting factor products. […]
HFA Joins 43 Other Organizations in Urging Protection from Further Medicaid Cuts
On April 22, 2026, Hemophilia Federation of America joined 43 other patient and rare disease organizations, which make up the Partnership to Protect Coverage, in urging federal leaders in to protect additional cuts or policies impacting Medicaid and the Affordable Care Act. The letter, addressed to Senate Majority Leader John Thune, Senate Minority Leader Chuck […]
2026 Annual Award Winners
HFA announced its annual award winners at Symposium in New Orleans. This year’s awards and winners include: Charles Stanley Hamilton Legacy Award This award is for extraordinary lifetime service that encompasses national volunteerism, professionalism and leadership. Charles was a Louisiana native who suffered from severe hemophilia A and who passed far too soon. He was the son […]
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