Blog: Intern Introspective #7
It feels incredibly surreal to think about the fact that this is my final week at HFA this summer, and that in less than a week I will no longer be exploring D.C. and will instead be back home in San Diego. The past ten weeks here in Washington, D.C. with HFA have been an […]
Blog: Intern Introspective #6
The fact that I only have two months of interning this summer here in Washington, D.C. has led me to jam-pack my days full in a desperate attempt to make the most of this incredible opportunity. My weekdays always start with me hopping in the shower (shower count: 1) before I quickly cook myself a […]
Blog: Intern Introspective #5
Last week, HFA held the Young Adult Advocacy Summit, or as we called it in-office, YAAS. Saturday’s evening began with a lovely introduction to all those who were flown in, and Noemy and I were quickly welcomed into the fold of young adults who were either bleeders or siblings of bleeders, just like myself. Being […]
Blog: Intern Introspective #4
A Day-in-the-Life of an HFA Intern: Greetings from the nation’s capital! As we reach the halfway point of my internship at HFA, I would say that I have found my rhythm in D.C. Although I have been in the district since late April for a previous internship, the way I prepare for a day in […]
Statement: HFA Responds to Latest Gene Therapy Announcement
Yesterday, the U.S. Food and Drug Administration approved Roctavian (valoctocogene roxaparvovec), the first gene therapy for hemophilia A. This new treatment option, for the treatment of adults with severe factor VIII deficiency, represents a significant milestone in the treatment of hemophilia A. As a community-based, patient-centered organization, Hemophilia Federation of America (HFA) intimately understands and […]
Blog: Intern Introspective #3
No matter how many times I visit Capitol Hill, there is always a larger-than-life sensation I get whenever I see the buildings looming over me. I think it’s the knowledge that these people who know next to nothing about my life experience have my livelihood in their hands. The immense power held by this small […]
Blog: Intern Introspective #2
Congressional hearings, Hill Days and health webinars, oh my! Four weeks into the HFA internship and I have been able to do each of these along with so much more. Finally, being at this internship means I can continue to pull the thread – if you will – on various healthcare issues that affect the […]
HFA Launches Clinical Trials Search Site
Hemophilia Federation of America has launched a new website to search for clinical trials for patients with bleeding disorders. Additionally, they have created a new resource for patients to learn more about the clinical trials process. “Patients and families have asked for a way to easily search for clinical trials, and Hemophilia Federation of America […]
Blog: Intern Introspective
Hello! My name is Karina Piu, and I am one of the two Policy and Government Affairs interns working with HFA this summer in Washington, D.C. I just graduated this May from San Diego State University with a bachelor of arts in political science and a minor in sociology. While I myself do not have […]
HFA Welcomes Dan Kelsey as Chief Executive Officer
Experienced executive brings outcome-driven leadership to the national nonprofit patient advocacy group. WASHINGTON, DC, April 12, 2023 – The Board of Directors of Hemophilia Federation of America (HFA) unanimously selected Dan Kelsey as HFA’s new Chief Executive Officer (CEO) on April 7, 2023. Dan will join the HFA team on Wednesday, April 12 and attend […]
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