Press Release: First-Ever Gene Therapy Approved for Hemophilia B

red blood cells

FOR IMMEDIATE RELEASE  First-Ever Gene Therapy Approved for Hemophilia B  National patient advocacy organization issues formal statement.  WASHINGTON, D.C., Nov. 23, 2022—Hemophilia Federation of America (HFA), a national advocacy leader for patients with bleeding disorders, released a statement considering recent news that the U.S. Federal Food and Drug Administration (FDA) approved CSL Behring’s (CSL) HEMGENIX® […]

HFA Statement on FDA Approval of First-Ever Gene Therapy for Hemophilia B

red blood cells

Five years ago, Hemophilia Federation of America articulated a broad vision that includes advocating for improved care and quality of life for those affected by bleeding disorders. Hemophilia imposes many burdens: painful and unpredictable bleeding; joint damage or other serious long-term complications; onerous treatment regimens; and numerous other constraints on personal and family life. HFA […]

An “Unspeakable” tragedy brings community together

Filming Unspeakable at cemetary

Over 250 people registered for HFA’s first webinar in a 4-part series to talk about the tainted blood tragedy with Robert C. Cooper, Blood Brother, writer, director, executive producer, and owner of Mezo Entertainment with over 400 episodes on television who is best known for his work on the series “Stargate” and now “Unspeakable.” Based on […]

Females in Research Sharing and Translation (FIRST) Project

Inherited bleeding disorders, such as hemophilia and von Willebrand disease (vWD), have long been under-recognized as causes for bleeding in females. Part of the problem with this under recognition has been the lack of opportunities for female engagement in research related these bleeding disorders.

HFA names Barbra Kavanaugh as interim CEO

HFA is pleased to announce the hiring of Barbra Kavanaugh, a seasoned non-profit business executive, as Interim CEO.Barbra Kavanaugh has served as an interim executive in several metro DC non-profit organizations, after decades as a leader in both non-profit and public sectors. She is also the Director of the Interim Executive Network "The most important […]

HFA Responds to Supreme Court’s Decision Overturning Roe v. Wade

facade of building

At Hemophilia Federation of America, our bedrock principle is and always will be access: access to all safe and effective care and treatments for bleeding disorders, as well as access to the quality coverage that pays for such care. Reproductive care is essential to the health of all women – and is particularly important to […]

HFA Welcomes Our Summer 2022 Interns to Washington, DC

HFA is proud to welcome our 2022 Policy & Government Affairs Interns to Washington, DC for the summer. Our interns work about 30-35 hours a week in our DC offices and conduct research and analysis to help create educational resources on a variety of issues related to bleeding disorders. Other responsibilities may include attending relevant […]

On the Horizon 2022: Your Questions Answered

woman at conference

During Symposium 2022, we hosted our annual On the Horizon sessions. Several attendees asked great questions, so we assembled the questions and answers for you here. For more information on these topics, please visit the Current, New, and Emerging Therapies courses in HFA's Learning Central's University section. Enjoy! Question Answer Isn't NovoSeven used for acquired hemophilia? […]

HFA Offers $1000 Grants to Learn New Skills and Help Land Your Dream Job!

woman at desk writing

Use $1000 to gain a skill or certification to help land your next jog. If you are you an adult (age 18 – 64) with a bleeding disorder, then you may be eligible to apply for an HFA Job Readiness Grant. From bookkeeping to blogging, Scrum Master to Salesforce Administrator, coder to Certified Property Manager, […]

Career Conversations: Job Readiness Recipients of 2021

woman holding folder

Introducing our Job Readiness Grant Recipients Have you ever faced a barrier to employment because of your bleeding disorder or financial issues? Meet the recipients of HFA’s 2021 Job Readiness Grants. To learn more, visit our Job Readiness grants page. Ahmed Tareq Al Badri, Six Sigma Green Belt Certification This grant means a lot to me […]