Category: Infusing Love

Un año nuevo saludable

¡Hola, mis queridas madres y Feliz año nuevo para todas!¿Has notado el cambio en las preferencias en alimentos en los últimos años? Hoy les hablaré de lo beneficioso que es comer saludable.  De porque tener hábitos alimentarios saludables nos alarga la vida para disfrutar a nuestras futuras generaciones.Nuestros hábitos alimentarios, en gran medida, determinan cómo […]

A Pillar of Strength

The staff of Hemophilia Federation of America and Infusing Love: A Mom’s View bloggers extend condolences to Maryann on the death of her son, Max. There are times as a hemophilia mom that you feel as though you can handle anything, like you could take on the world and make it a better place. Then there […]

Cirugía en Tiempos de Pandemia

¡Saludos nuevamente a todas las extraordinarias mamás de nuestra comunidad, un fuerte abrazo desde la distancia!Para los que no me conocen, tengo un niño de 11 años con hemofilia A, que se llama Iván Manuel. Hoy les escribo, pensando en los diferentes retos que esta pandemia nos ha traído a nuestras vidas. Desde los estudios y […]

Boys to Men

 I have been “Infusing Love” into my son Marques for the past 18 years! I have not only been infusing him with factor, so his blood clotting levels are normal, but I have tried to infuse him with the education he needs to live a long life with hemophilia. I pray!As hemophilia moms, we have […]

My Quarantine Teaching Experience

Remote learning causes concerns for students with disabilities. Because of COVID-19, I found myself using technology as I teach and learn. I used to take for granted toilet paper, paper towel, hand sanitizer, rubber/paper gloves, rubbing alcohol, bleach and masks because it was always there at my reach. Now I have found myself shopping for these things.This […]

The Other Side Effects

There are new bleeding disorder side effects cropping up all the time. By side effects, I mean the extraneous things we have to manage such as insurance, genotyping and product choice. In a time before all the advancements, a side effect was learning to be an IV nurse and find a vein on a toddler,  […]

Living with a Bleeding Disorder in the Pandemic

Since March 2020 we have had to get used to a new reality where taking care of our kids’ already special health situation has turned even more complicated. How to handle frequent visits to the hospital if the hospital doesn’t seem like a safe place? Doing virtual schooling had to grow on us, but we […]

All the Adult Things

My son, Michael, has severe hemophilia B. He is soon to be 28 years old. Wow! That time flew by! I remember the day we found out he had hemophilia. He was 11 days old. We were shocked, scared and ready to take on this challenge life had given us.  We educated ourselves and our […]

We Are Strong!

Strong.Every January I reflect on the year to come. I chose a word based on something personal, either to myself or to our family. This year I chose the word: Strong. I chose that word specific to my goals for the year. I’ve been a consistent runner since 2015. In fact, I love it so […]

The Power of Symposium

 Attending HFA’s Symposium has always fascinated me. I have attended a few symposiums with my family: St. Louis, Cleveland, Las Vegas, and San Diego. During symposium, I networked with individuals who were in various fields: social workers, physicians, nurses, physical therapists, and patients.  Days were filled with inspirational kickoff and educational breakout sessions. There is […]