Word From Washington: The Shutdown, Health Insurance, and Protecting Our Community
By Adam Alver, Policy Director A New Take on Word From Washington For this month’s article, we’ve made some changes. We know our community includes people with all kinds of backgrounds. Some follow every twist in Washington, and others just want the key takeaways. This update is written to be clear and easy to follow, […]
Word From Washington: Catastrophic Cuts to Healthcare, An Update
Congress Advances Medicaid Cuts For decades, the bleeding disorders community has advocated for better access to healthcare. All that progress could now be erased, despite President Trump having promised not to touch Medicaid, and having told Congressional Republicans, “Don’t f*** with Medicaid.” On May 13, after a committee hearing lasting more than 26 hours, the […]
Word From Washington: Too Close for Comfort
Massive Layoffs and Budget Bills Pose a Serious Threat to Our Community This Month’s Update and Community Progress Thank you to all our community members who came together for Symposium just three short weeks ago! We heard a lot of important questions about understanding how to navigate health insurance coverage and plans, how to get […]
Word From Washington: The Administration Marches Forward
The Budget, Presidential Initiatives, and Roadblocks to Both Since our most recent Word From Washington in February, the Trump Administration has continued to advance it’s pursuit of action through Executive Orders, including new executive orders aimed at cutting federal regulations, advancing the Administration’s “Make America Healthy Again” initiative, and designating English as the official language […]
Word from Washington: The Federal Landscape
2025 has seen an incredibly active start to the year, with a new Presidential Administration, a refocused Congress under slim Republican control, and a firehose of new presidential actions (or executive orders – “EOs” for short). A New Administration (Again) On January 20th, Donald Trump once again took office as the President of the United […]
Advocacy News: August 2024
Word from Washington Federal Agencies Uninsured rate spikes as Medicaid “unwinding” disenrollments break 25 million According to the most recent data from the KFF Medicaid Unwinding Enrollment Tracker, more than 25 million Medicaid enrollees have been disenrolled since states were allowed in April 2023 to resume eligibility verifications following the COVID-19 public health emergency (PHE). […]
Advocacy News: July 2024
Word from Washington Federal Agencies CMS prevails in lawsuit over partial Medicaid expansion in Georgia A federal judge has ruled in favor of the Centers for Medicare and Medicaid Services (CMS) in Georgia’s lawsuit over whether the agency can discontinue the state’s partial Medicaid expansion before its five-year approval expires. The Georgia Pathways to Coverage […]
Advocacy News: June 2024
Word from Washington Federal Courts Unanimous Supreme Court dismisses challenge to FDA approval for mifepristone In a case that threatened to restrict access to hormonal therapies for women with bleeding disorders, the U.S. Supreme Court unanimously reversed lower court decisions that effectively invalidated the 2000 approval by the Food and Drug Administration (FDA) of the […]
Advocacy News: April 2024
Word from Washington After one year, Medicaid coverage losses during “unwinding” continue to surpass worst fears According to the latest KFF Medicaid Unwinding Enrollment Tracker, more than 21 millionAmericans have lost Medicaid coverage during the first year after states were allowed to resume eligibility verifications following the COVID-19 public health emergency. There remains wide variation […]
Advocacy News: March 2024
Word From Washington Federal Agencies Supreme Court Congress State of the States Oregon becomes first state in 2024 to pass protections against copay accumulator adjusters. Oregon Governor Tina Kotek (D) signed legislation unanimously passed by the House and Senate that protects consumers in state-regulated health plans from harmful and discriminatory copay accumulator adjuster programs (CAAPs). […]
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