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EXECUTIVE CORNER Assisting, educating, and advocating for the
bleeding disorders community since 1994.
Dear Friends,
Issue 57 | Volume 18 | Summer 2018
As the newly-elected HFA board
chairman, I had the opportunity to EXECUTIVE LEADERSHIP
introduce myself to those in attendance
at the Symposium luncheon, but have not had the opportunity to meet so Board Chair | Josh Hemann
many in the community.
President & CEO | Kimberly Haugstad, MBA
My wife Heather and I have three wonderful children — two daughters, Jayla
(10), Kinzie (9) and a son, Milo (3). Our girls both have von Willebrand PRODUCTION TEAM
disease — Jayla type 1 and Kinzie type 3. Milo has low factor levels, but to
this point has not exhibited symptoms. Editor | Emily Roush-Bobolz
Art Direction | Michael DeGrandpre
We received Kinzie’s diagnosis just after she turned a year old, due to Design & Layout | Kristin Mitchell Design, Inc.
excessive bleeding from a surgery. As a baby she bled longer from Copy Editor | Kit Salisbury, Ann LeWalk
immunizations and was always covered in bruises. We were very fortunate Informative Communications Manager
to have someone who finally realized her bleeding was not normal. Within
a very short amount of time we had answers. If it were not for Kinzie, Jayla Kyle McKendall
would likely not have been diagnosed.
Contributing Writers
Our family likes to be active and like many, seems to be constantly on the Carrie Koenig, HFA staff;
go. The kids are active in soccer, basketball, softball, piano and flag football.
My girls both treat, but in different ways. We live with both the prophylaxis Lori Long, HFA staff;
and on-demand lifestyle. Sarah Shinkman, HFA staff;

I am starting my seventh year of serving on HFA’s board. When I first Deema Tarazi, HFA staff;
started it was very overwhelming, but over the years I have continued to be Wendy Owens, consultant to HFA;
more active and truly feel HFA is where I belong.
Kyle McKendall, HFA staff;
During my time as board chairman, my goals are to continue to advocate for Miriam Goldstein, HFA staff;
the increased awareness and treatment of women with bleeding disorders Martha Boria Negron, HFA staff;
and ensure HFA continues to be a leader in advocating for access to care Emily Roush-Bobolz, HFA staff;
within our community. I hope to continue to look toward the future, while
honoring the history of the bleeding disorder community. Sonji Wilkes, HFA staff;
Kimberly Haugstad, HFA staff
HFA is a community-focused organization, and I am honored to be able to
serve the whole community as HFA’s board chairman. Contributing Photographers
Gina Richards, Michael DeGrandpre
Josh Hemann
Board Chair The information printed in
Dateline Federation is provided for
general purpose use. HFA does not give
medical advice or engage in the practice of
medicine and recommends that you consult
with your physician or local treatment center before
beginning any form of treatment.

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